HSD和hEDS患者医疗差异调查结果-50661
包含310名HSD和hEDS患者诊断旅程与医疗差异的在线调查结果数据。

基本信息
资源简介
HSD和hEDS患者医疗差异调查结果
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集,收录 1 个文件、合计 413.61 KB,主题涵盖 hypermobile syndrome、Health disparities monitoring,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Healthcare Disparities among HSD and hEDS Patients Survey Results》。源站首次发布:2024-09-04。
【数据内容】
源站原始描述:This study sought to assess the diagnostic journey of HSD and hEDS patients. Their perspective of the care they received and the medical professionals they encountered were used to create a holistic view of their healthcare treatment. An online survey was conducted and distributed over social media platforms to gain insight into HSD/hEDS patients'' diagnostic journey and the disparities they experienced in receiving a diagnosis. A total of 310 responses were collected, and data analyses were cond…
中文译文(机器翻译,仅供快速理解,请以原文为准):本研究旨在评估 HSD 和 hEDS 患者的诊断历程。研究者利用他们对所接受照护及所接触医疗专业人员的看法,构建其医疗保健治疗的整体图景。研究通过社交媒体平台开展并分发了一项在线调查,以深入了解 HSD/hEDS 患者的诊断历程及其在获得诊断过程中经历的不平等。共收集到 310 份回复,并按三组(总体、HSD 和 hEDS)进行了数据分析。
主表 Healthcare Disparities among HSD and hEDS Patients_September 3, 2024_21.44.csv 含 76 列、样本前 330 行结构完整。
【数据结构与技术规格】
文件数 1 个,合计 413.61 KB。Healthcare Disparities among HSD and hEDS Patients_September 3, 2024_21.44.csv:text/csv,413.61 KB。数据集 DOI:10.6084/m9.figshare.26932957.v1。
【主题与分类】
源站学科分类:Health equity、People with disability。主题标签:hypermobile syndrome、Health disparities monitoring。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面:https://figshare.com/articles/dataset/Healthcare_Disparities_among_HSD_and_hEDS_Patients_Survey_Results/26932957
使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。
规范引用:Martinez, Brooke; Scheidell, Joy (2024). Healthcare Disparities among HSD and hEDS Patients Survey Results. figshare. Dataset
【使用注意】
· 源站最后修改于 2026-09-04,引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务(收技术服务费,非数据销售)
暂未开放当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取(Figshare)
- 源站标题:Healthcare Disparities among HSD and hEDS Patients Survey Results
- DOI:10.6084/m9.figshare.26932957.v1
- 发布日期:2024-09-04
- 文件数:1 个
- 文件总体积:413.61 KB
- 源站页面:https://figshare.com/articles/dataset/Healthcare_Disparities_among_HSD_and_hEDS_Patients_Survey_Results/26932957
命令行下载
curl -L -o "Healthcare Disparities among HSD and hEDS Patients_September 3, 2024_21.44.csv" "https://ndownloader.figshare.com/files/48992506"
文件清单
Healthcare Disparities among HSD and hEDS Patients_September 3, 2024_21.44.csv(413.61 KB)
文件总体积 413.61 KB(源站 API 实测)。
数据加载示例(图像类)
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
This study sought to assess the diagnostic journey of HSD and hEDS patients. Their perspective of the care they received and the medical professionals they encountered were used to create a holistic view of their healthcare treatment. An online survey was conducted and distributed over social media platforms to gain insight into HSD/hEDS patients’’ diagnostic journey and the disparities they experienced in receiving a diagnosis. A total of 310 responses were collected, and data analyses were conducted in three groups (total, HSD, and hEDS).
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.26932957.v1(source: https://figshare.com/articles/dataset/Healthcare_Disparities_among_HSD_and_hEDS_Patients_Survey_Results/26932957)。
数据缺失?
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