北卡罗来纳中部镰状细胞病患者护理的障碍与促进因素数据集（急诊科提供者视角）

数据集获取（Figshare）

• 源站标题：Barriers and facilitators to care for individuals with sickle cell disease in central North Carolina: The emergency department providers’ perspective
• DOI：10.1371/journal.pone.0216414
• 发布日期：2019-05-07
• 文件数：2 个
• 文件总体积：1.25 MB
• 源站页面：https://plos.figshare.com/articles/dataset/Barriers_and_facilitators_to_care_for_individuals_with_sickle_cell_disease_in_central_North_Carolina_The_emergency_department_providers_perspective/8090600

命令行下载

curl -L -o "pone.0216414.s001.pdf" "https://ndownloader.figshare.com/files/15089396"
curl -L -o "pone.0216414.s002.pdf" "https://ndownloader.figshare.com/files/15089402"

文件清单

• pone.0216414.s001.pdf（665.58 KB）
• pone.0216414.s002.pdf（588.61 KB）

文件总体积 1.25 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Background
Sickle cell disease (SCD) is an inherited blood disorder associated with acute pain crisis and other complications that lead to frequent emergency department (ED) visits. To improve outcomes, the National Heart, Lung and Blood Institute (NHLBI) published recommendations for management of acute pain crisis. NHLBI also funded eight centers across the United States to participate in the Sickle Cell Disease Implementation Consortium. This six-year effort consists of two phases. Phase one involved conducting needs assessments of barriers and facilitators to SCD care. The aim of this study was to describe challenges and facilitators to caring for SCD from the perspective of ED providers in central North Carolina (NC).
Methods and findings
We conducted a needs assessment survey with ED providers throughout NC. We also conducted focus groups and an interview with ED providers from three healthcare facilities in central NC. One hundred and eleven surveys (60.6% physicians, 26% registered nurses, 13.5% physician assistants) were completed and 13 providers participated in 3 focus groups and 1 interview. Slightly more than half (50. 4%) utilized individualized dosing protocols to treat sickle cell pain. Only 32.4% of the providers were aware of the NHLBI SCD recommendations. Barriers to care from the survey included: patient behavior (67.57%), the opioid epidemic (67.57%), overcrowding (64.86%), and concern about addiction (49.55%). Perceived barriers to care identified in the focus groups and interview included: high patient volumes, lack of SCD care protocols, poor communication among providers and stigma. Facilitators to care included: individualized pain plans, comfort prescribing opioids and electronic medical records.
Conclusion
SCD care is influenced by many factors. Our results illuminate the need for increased use of the NHLBI SCD recommendations, individualized pain protocols, and use of electronic medical records and other care-interventions, specifically geared towards improving provider knowledge and mitigating provider bias.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0216414（source: https://plos.figshare.com/articles/dataset/Barriers_and_facilitators_to_care_for_individuals_with_sickle_cell_disease_in_central_North_Carolina_The_emergency_department_providers_perspective/8090600）。