规划痴呆症后的晚年生活：家庭照顾者对生物标志物的看法与普通人对痴呆症预测基因检测态度的比较数据集

数据集获取（Figshare）

• 源站标题：Planning later life with dementia: comparing family caregivers’ perspectives on biomarkers with laypersons’ attitudes towards genetic testing of dementia prediction
• DOI：10.6084/m9.figshare.11839335.v1
• 发布日期：2020-02-12
• 文件数：2 个
• 文件总体积：64.05 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Planning_later_life_with_dementia_comparing_family_caregivers_perspectives_on_biomarkers_with_laypersons_attitudes_towards_genetic_testing_of_dementia_prediction/11839335

命令行下载

curl -L -o "cngs_a_1637719_sm5995.docx" "https://ndownloader.figshare.com/files/21683181"
curl -L -o "cngs_a_1637719_sm5994.docx" "https://ndownloader.figshare.com/files/21683184"

文件清单

• cngs_a_1637719_sm5995.docx（41.02 KB）
• cngs_a_1637719_sm5994.docx（23.03 KB）

文件总体积 64.05 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Predictive medicine presents opportunities to consider later life under conditions of illness, such as dementia. This paper examines how family caregivers (N = 27) assess the opportunity of prediction and early diagnosis of dementia for oneself based on their particular experience. Furthermore, it compares their attitudes with laypersons’ attitudes (N = 43) towards genetic testing of APOE. By this, we elaborate how much personal experience impacts anticipation and affects, but also moral attitudes towards predictive medicine. Differences in our settings do not allow for direct comparison, so our analysis focuses on multiple similarities in the assessments of predictive (non-genetic vs. genetic) testing. Groups’ reasoning showed also differences influenced mainly by personal experience. Family caregivers addressed more responsibility towards family and had more hopes into medical treatments. To cope with the disease, they expressed expectations to start with medicine and care decisions as early as possible. Laypersons, however, stressed self-determination more and expressed worries about the influence of the pharmaceutical industry by referring to unnecessary medication and, implicitly, the medicalization of aging.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.11839335.v1（source: https://tandf.figshare.com/articles/dataset/Planning_later_life_with_dementia_comparing_family_caregivers_perspectives_on_biomarkers_with_laypersons_attitudes_towards_genetic_testing_of_dementia_prediction/11839335）。