Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic
囊性纤维化患者与提供者对远程医疗体验的问卷调查结果（PDF），涵盖满意度、未来使用意向及远程医疗优缺点。
基本信息
资源简介
Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 1 个文件、合计 102.63 KB，主题涵盖 cystic fibrosis、quality improvement、telehealth、telemedicine、patient experience，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF》。配套论文《Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic》发表于 Frontiers in Pediatrics（2021），DOI：10.3389/fped.2021.784692。源站首次发布：2021-11-24。
【数据内容】
源站原始描述：In response to the novel coronavirus (COVID-19) pandemic, all in-person cystic fibrosis (CF) appointments were converted to telemedicine visits at UCSF Benioff Children''s Hospital. The purpose of our study was to learn about the experiences that patients, families, and providers had with telemedicine visits and to assess their interest in using telemedicine in the future. Our hypothesis was that most patients, families, and providers want to continue telemedicine visits in the future. An anonymo…
中文译文（机器翻译，仅供快速理解，请以原文为准）：为应对新型冠状病毒（COVID-19）大流行，UCSF Benioff Children''s Hospital将所有囊性纤维化（CF）面对面预约改为远程医疗就诊。本研究的目的是了解患者、家属和医疗服务提供者在远程医疗就诊中的体验，并评估他们未来使用远程医疗的兴趣。我们的假设
【数据结构与技术规格】
文件数 1 个，合计 102.63 KB。Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF：application/pdf，102.63 KB。数据集 DOI：10.3389/fped.2021.784692.s002。
【主题与分类】
源站学科分类：Foetal Development and Medicine、Obstetrics and Gynaecology、Paediatrics、Paediatrics and Reproductive Medicine not elsewhere classified。主题标签：cystic fibrosis、quality improvement、telehealth、telemedicine、patient experience、provider experience。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_2_Patient_and_Provider_Experience_With_Cystic_Fibrosis_Telemedicine_Clinic_PDF/17076377
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Hendra, Kalen; Neemuchwala, Fatima; Chan, Marilynn; Ly, Ngoc P.; Gibb, Elizabeth R. (2021). Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF. Frontiers. Dataset
【使用注意】
· 源站最后修改于 2023-06-02，引用时请注意版本时效。
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF
- DOI：10.3389/fped.2021.784692.s002
- 发布日期：2021-11-24
- 文件数：1 个
- 文件总体积：102.63 KB
- 源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_2_Patient_and_Provider_Experience_With_Cystic_Fibrosis_Telemedicine_Clinic_PDF/17076377
命令行下载
curl -L -o "Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF" "https://ndownloader.figshare.com/files/31573730"
文件清单
Data_Sheet_2_Patient and Provider Experience With Cystic Fibrosis Telemedicine Clinic.PDF（102.63 KB）
文件总体积 102.63 KB（源站 API 实测）。
数据说明
In response to the novel coronavirus (COVID-19) pandemic, all in-person cystic fibrosis (CF) appointments were converted to telemedicine visits at UCSF Benioff Children’'s Hospital. The purpose of our study was to learn about the experiences that patients, families, and providers had with telemedicine visits and to assess their interest in using telemedicine in the future. Our hypothesis was that most patients, families, and providers want to continue telemedicine visits in the future. An anonymous 11-question survey was distributed to patients, families, and providers in November and December 2020. The survey was completed by 46 of 72 families (64% response rate) and 24 of 25 providers (96% response rate). Thirty-seven families (80%) and 21 providers (88%) were satisfied with their telemedicine experience. Thirty-three families (72%) want to have telemedicine visits in the future. Thirty-five families (76%) and 22 providers (92%) were satisfied with their experience using Zoom. Forty families (87%) and 19 providers (90%) want 2 or more visits each year to be via telemedicine. Our study showed that most families and providers were satisfied with telemedicine, would like to continue using telemedicine, and prefer to have at least 2 of the 4 recommended annual CF visits via telemedicine. Our survey identified the following benefits to telemedicine: decreased travel time, decreased cost, and avoiding exposure to COVID. However, we need to ensure that we do not exacerbate existing health disparities for families that do not speak English and/or do not have the internet capabilities to support telemedicine technology.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.3389/fped.2021.784692.s002（source: https://frontiersin.figshare.com/articles/dataset/Data_Sheet_2_Patient_and_Provider_Experience_With_Cystic_Fibrosis_Telemedicine_Clinic_PDF/17076377）。
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