帕金森病个性化监测需求：患者与专业医疗保健提供者视角的数据表1

数据集获取（Figshare）

• 源站标题：data_sheet_1_Need for personalized monitoring of Parkinson’s disease: the perspectives of patients and specialized healthcare providers.zip
• DOI：10.3389/fneur.2023.1150634.s001
• 发布日期：2023-05-04
• 文件数：1 个
• 文件总体积：1.42 MB
• 源站页面：https://frontiersin.figshare.com/articles/dataset/data_sheet_1_Need_for_personalized_monitoring_of_Parkinson_s_disease_the_perspectives_of_patients_and_specialized_healthcare_providers_zip/22758011

命令行下载

curl -L -o "data_sheet_1_Need for personalized monitoring of Parkinson’s disease: the perspectives of patients and specialized healthcare providers.zip" "https://ndownloader.figshare.com/files/40436681"

文件清单

• data_sheet_1_Need for personalized monitoring of Parkinson’s disease: the perspectives of patients and specialized healthcare providers.zip（1.42 MB）

文件总体积 1.42 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

BackgroundDigital tools such as wearable sensors may help to monitor Parkinson’s disease (PD) in daily life. To optimally achieve the expected benefits, such as personized care and improved self-management, it is essential to understand the perspective of both patients and the healthcare providers.
ObjectivesWe identified the motivations for and barriers against monitoring PD symptoms among PD patients and healthcare providers. We also investigated which aspects of PD were considered most important to monitor in daily life, and which benefits and limitations of wearable sensors were expected.
MethodsOnline questionnaires were completed by 434 PD patients and 166 healthcare providers who were specialized in PD care (86 physiotherapists, 55 nurses, and 25 neurologists). To gain further understanding in the main findings, we subsequently conducted homogeneous focus groups with patients (n = 14), physiotherapists (n = 5), and nurses (n = 6), as well as individual interviews with neurologists (n = 5).
ResultsOne third of the patients had monitored their PD symptoms in the past year, most commonly using a paper diary. Key motivations were: (1) discuss findings with healthcare providers, (2) obtain insight in the effect of medication and other treatments, and (3) follow the progression of the disease. Key barriers were: (1) not wanting to focus too much on having PD, (2) symptoms being relatively stable, and (3) lacking an easy-to-use tool. Prioritized symptoms of interest differed between patients and healthcare providers; patients gave a higher priority to fatigue, problems with fine motor movements and tremor, whereas professionals more frequently prioritized balance, freezing and hallucinations. Although both patients and healthcare providers were generally positive about the potential of wearable sensors for monitoring PD symptoms, the expected benefits and limitations varied considerably between groups and within the patient group.
ConclusionThis study provides detailed information about the perspectives of patients, physiotherapists, nurses and neurologists on the merits of monitoring PD in daily life. The identified priorities differed considerably between pati

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fneur.2023.1150634.s001（source: https://frontiersin.figshare.com/articles/dataset/data_sheet_1_Need_for_personalized_monitoring_of_Parkinson_s_disease_the_perspectives_of_patients_and_specialized_healthcare_providers_zip/22758011）。