使用教育需求评估工具探索皮肤淋巴瘤患者教育需求的数据表1

数据集获取（Figshare）

• 源站标题：DataSheet_1_Exploring the educational needs of patients with cutaneous lymphoma using an educational needs assessment tool.pdf
• DOI：10.3389/fonc.2024.1433821.s001
• 发布日期：2024-08-07
• 文件数：1 个
• 文件总体积：113.51 KB
• 源站页面：https://frontiersin.figshare.com/articles/dataset/DataSheet_1_Exploring_the_educational_needs_of_patients_with_cutaneous_lymphoma_using_an_educational_needs_assessment_tool_pdf/26507698

命令行下载

curl -L -o "DataSheet_1_Exploring the educational needs of patients with cutaneous lymphoma using an educational needs assessment tool.pdf" "https://ndownloader.figshare.com/files/48219703"

文件清单

• DataSheet_1_Exploring the educational needs of patients with cutaneous lymphoma using an educational needs assessment tool.pdf（113.51 KB）

文件总体积 113.51 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

BackgroundCutaneous T-cell lymphomas (CTCL) are a group of rare non-Hodgkin lymphomas characterized by initial localization of malignant T-lymphocytes in the skin. Support and information from nurses and patient support groups have proven useful for patients with CTCL, but little is known about the educational needs of these patients.
ObjectivesTo investigate the self-reported educational needs among CTCL patients using an educational needs assessment tool and to explore differences related to sex, age, disease duration, clinical stage, and education.
MethodsThis observational single center study analyzed 70 patients with CTCL in routine dermatological outpatient care. The patients were asked to complete a questionnaire to capture their educational needs in regard to CTCL. The questionnaire was inspired by the educational needs assessment tool, designed and validated for patients with rheumatoid disease. The questionnaire included a general question, “In general, how much information do you want to receive about your lymphoma disease?”, and five domains covering information relating to disease process (6 items), treatment (4 items), feelings (2 items), self-management of itch, sleep, and rest (2 items), and support systems (3 items). The domain scores ranged from 0 to 18 and the total score from 0 to 51, with a higher score indicating a greater need for education.
ResultsWhen asked “In general, how much information do you need?”, females wanted to know more compared with males (2.6 vs. 2.1, p=0.006), and patients with higher education wanted to know more than patients with lower education (2.5 vs. 2.0, p=0.025). The domains concerning treatment (80%) and disease process (75%) revealed the greatest needs for education. Patients with a disease duration We found that 65% of the CTCL patients in the cohort, particularly females, expressed a need for education, especially regarding disease process and treatment. A deeper understanding of the educational needs would enable healthcare providers to give personalized information.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fonc.2024.1433821.s001（source: https://frontiersin.figshare.com/articles/dataset/DataSheet_1_Exploring_the_educational_needs_of_patients_with_cutaneous_lymphoma_using_an_educational_needs_assessment_tool_pdf/26507698）。