当风险成为疾病：宫颈上皮内瘤变医学监测的个人和社会后果

数据集获取（Figshare）

• 源站标题：When risk becomes illness: The personal and social consequences of cervical intraepithelial neoplasia medical surveillance
• DOI：10.1371/journal.pone.0226261
• 发布日期：2019-12-16
• 文件数：2 个
• 文件总体积：30.93 KB
• 源站页面：https://plos.figshare.com/articles/dataset/When_risk_becomes_illness_The_personal_and_social_consequences_of_cervical_intraepithelial_neoplasia_medical_surveillance/11372949

命令行下载

curl -L -o "pone.0226261.s001.docx" "https://ndownloader.figshare.com/files/20204178"
curl -L -o "pone.0226261.s002.docx" "https://ndownloader.figshare.com/files/20204181"

文件清单

• pone.0226261.s001.docx（15.21 KB）
• pone.0226261.s002.docx（15.71 KB）

文件总体积 30.93 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Background
After the early detection of cervical intraepithelial neoplasia (CIN), medical surveillance of the precancerous lesions is carried out to control risk factors to avoid the development of cervical cancer.
Objective
To explore the effects of medical surveillance on the personal and social lives of women undergoing CIN follow-up and treatment.
Methodology
A generic qualitative study using a poststructuralist perspective of risk management was carried out in a gynecology clinic in a public hospital of the Galician Health Care System (Spain). Participants were selected through purposive sampling. The sample consisted of 21 women with a confirmed diagnosis of CIN. Semistructured interviews were recorded and transcribed, and a thematic analysis was carried out, including researcher triangulation to verify the results of the analysis.
Findings
Two main themes emerged from the participants’ experiences: CIN medical surveillance encounters and risk management strategies are shaped by the biomedical discourse, and the effects of “risk treatment” for patients include (a) profound changes expected of patients, (b) increased patient risk management, and © resistance to risk management. While doctors’ surveillance aimed to prevent the development of cervical cancer, women felt they were sick because they had to follow strict recommendations over an unspecified period of time and live with the possibility of a life-threatening disease. Clinical risk management resulted in the medicalization of women’s personal and social lives and produced great uncertainty.
Conclusions
This study is the first to conceptualize CIN medical surveillance as an illness experience for patients. It also problematizes the effects of preventative practices in women’s lives. Patients deal with great uncertainty, as CIN medical surveillance performed by gynecologists simultaneously trivializes the changes expected of patients and underestimates the effects of medical recommendations on patients’ personal wellbeing and social relations.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0226261（source: https://plos.figshare.com/articles/dataset/When_risk_becomes_illness_The_personal_and_social_consequences_of_cervical_intraepithelial_neoplasia_medical_surveillance/11372949）。