肿瘤临床试验参与者：特征与决策影响因素

数据集获取（Figshare）

• 源站标题：PARTICIPANTS OF ONCOLOGIC CLINICAL TRIALS: PROFILE AND ASPECTS INVOLVED IN THEIR DECISIONS
• DOI：10.6084/m9.figshare.7102658.v1
• 发布日期：2018-09-19
• 文件数：2 个
• 文件总体积：71.94 KB
• 源站页面：https://scielo.figshare.com/articles/dataset/PARTICIPANTS_OF_ONCOLOGIC_CLINICAL_TRIALS_PROFILE_AND_ASPECTS_INVOLVED_IN_THEIR_DECISIONS/7102658

命令行下载

curl -L -o "1678-1007-tes-16-03-1381-gf01.jpg" "https://ndownloader.figshare.com/files/13072547"
curl -L -o "Table_1.xls" "https://ndownloader.figshare.com/files/13072550"

文件清单

• 1678-1007-tes-16-03-1381-gf01.jpg（66.30 KB）
• Table_1.xls（5.63 KB）

文件总体积 71.94 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Abstract This is a study about the participants of clinical trials in the field of oncology that discusses the paradox between scientific advances and social inequality. We sought to get to know these people and to analyze the aspects involved in their decisions based on interviews and documents. Female participation was more expressive. The participants tend to have low schooling and low income. Most of them are retirees and housewives, and do not get assistance from the private health system. Their decisions revolved around the search for cure or recovery, as well as for the assurance of regular access to comprehensive health care and medicines. Signing the free and informed consent form did not guarantee the expression of autonomy, because crucial information, such as the goals, risks and post-study care are virtually unknown. The research participants tend to not understand the goals of the investigation, or they overestimate the direct medical benefits of their participation, and they tend to be unaware of the risks involved and of what does a research mean. The results should stimulate more critical practices and dialogues among the different players and institutions involved in the field of the research with human subjects, with the goal of promoting a science that is conscious and responsible, and that prevents people from being put in situations of inequality, vulnerability and moral suffering.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.7102658.v1（source: https://scielo.figshare.com/articles/dataset/PARTICIPANTS_OF_ONCOLOGIC_CLINICAL_TRIALS_PROFILE_AND_ASPECTS_INVOLVED_IN_THEIR_DECISIONS/7102658）。