解码临床试验术语：帮助人们理解癌症试验中安全性和生活质量的评估方式
一份帮助理解癌症临床试验中安全性与生活质量评估术语的信息图数据集。
基本信息
资源简介
解码临床试验术语：帮助人们理解癌症试验中安全性和生活质量的评估方式
【一句话概览】
本数据集是 figshare 公开的影像数据集，收录 3 个文件、合计 35.76 MB，主题涵盖 cancer、clinical trials、patients、podcast、quality of life，可用于医学图像分割、检测与分类模型的训练与评测，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Decoding clinical trial jargon: helping people understand how safety and quality of life are assessed in cancer trials》。配套论文《Decoding clinical trial jargon: helping people understand how safety and quality of life are assessed in cancer trials》发表于 Future Oncology（2024），DOI：10.1080/14796694.2024.2422808。源站首次发布：2025-06-11。
【数据内容】
源站原始描述：People living with cancer have a profound need to understand any potential negative impacts of treatment on their everyday lives and whether the treatment itself could cause other long-term health challenges. This podcast brings together the perspectives of a patient, patient advocates and an oncologist, to highlight opportunities to better support people in understanding the possible side effects of a treatment and potential impact on quality of life. In addition to bridging gaps between the pe…
中文译文（机器翻译，仅供快速理解，请以原文为准）：癌症患者迫切需要了解治疗对其日常生活可能产生的任何负面影响
【数据结构与技术规格】
文件数 3 个，合计 35.76 MB。ifon_a_2422808_sm9837.eps：image/x-eps，3.11 MB。ifon_a_2422808_sm9819.eps：image/x-eps，3.23 MB。数据集 DOI：10.6084/m9.figshare.27939276.v3。
【主题与分类】
源站学科分类：Medicine、Sociology、Biological Sciences not elsewhere classified、Information Systems not elsewhere classified、Cancer、Science Policy。主题标签：cancer、clinical trials、patients、podcast、quality of life、safety。
【适用方向】
影像类数据可用于医学图像分析模型（检测、分割、分类）的训练与评测，也可用于标注质量与成像参数相关性的研究。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/Decoding_clinical_trial_jargon_helping_people_understand_how_safety_and_quality_of_life_are_assessed_in_cancer_trials/27939276
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Decoding clinical trial jargon: helping people understand how safety and quality of life are assessed in cancer trials. Taylor & Francis. Burkholder, Jenny; Burkholder, Amy; DeCotiis, Gissoo; FitzGibbon, Hannah; Mehta, Pallav
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Decoding clinical trial jargon: helping people understand how safety and quality of life are assessed in cancer trials
- DOI：10.6084/m9.figshare.27939276.v3
- 发布日期：2025-06-11
- 文件数：3 个
- 文件总体积：35.76 MB
- 源站页面：https://tandf.figshare.com/articles/dataset/Decoding_clinical_trial_jargon_helping_people_understand_how_safety_and_quality_of_life_are_assessed_in_cancer_trials/27939276
命令行下载
curl -L -o "ifon_a_2422808_sm9837.eps" "https://ndownloader.figshare.com/files/55294365"
curl -L -o "ifon_a_2422808_sm9819.eps" "https://ndownloader.figshare.com/files/55294368"
curl -L -o "ifon_a_2422808_sm9323.mp3" "https://ndownloader.figshare.com/files/55294371"
文件清单
ifon_a_2422808_sm9837.eps（3.11 MB）ifon_a_2422808_sm9819.eps（3.23 MB）ifon_a_2422808_sm9323.mp3（29.41 MB）
文件总体积 35.76 MB（源站 API 实测）。
数据说明
People living with cancer have a profound need to understand any potential negative impacts of treatment on their everyday lives and whether the treatment itself could cause other long-term health challenges. This podcast brings together the perspectives of a patient, patient advocates and an oncologist, to highlight opportunities to better support people in understanding the possible side effects of a treatment and potential impact on quality of life. In addition to bridging gaps between the perspectives of healthcare providers and patients, it may be helpful to support people in interpreting relevant clinical trial findings. With this in mind, two accompanying visual guides use patient-friendly language to help people understand how safety and quality of life are measured in clinical trials.
A PDF version of this infographic is available as supplemental material.
A PDF version of this infographic is available as supplemental material.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.27939276.v3（source: https://tandf.figshare.com/articles/dataset/Decoding_clinical_trial_jargon_helping_people_understand_how_safety_and_quality_of_life_are_assessed_in_cancer_trials/27939276）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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