镰状细胞病患者参与医疗保健的文献研究

数据集获取（Figshare）

• 源站标题：The participation of cohabitants with sickle cell disease in health care: a bibliographic study
• DOI：10.6084/m9.figshare.14284200.v1
• 发布日期：2021-03-24
• 文件数：1 个
• 文件总体积：5.63 KB
• 源站页面：https://scielo.figshare.com/articles/dataset/The_participation_of_cohabitants_with_sickle_cell_disease_in_health_care_a_bibliographic_study/14284200

命令行下载

curl -L -o "Table_1.xls" "https://ndownloader.figshare.com/files/27135456"

文件清单

• Table_1.xls（5.63 KB）

文件总体积 5.63 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Abstract This paper aims to analyze the published scientific production about the participation of the sickle cell disease (SCD) subjects and their relatives, and the autonomy and social aspects of these individuals. A qualitative bibliographic search with the Portuguese-equivalent keywords “sickle cell disease” and “participation” was used. As a result, the following themes appeared: (1) Experience of illness, highlighting coexistence and ethnic-racial issues; (2) Participation in research and the perspective of health professionals on SCD; and (3) Autonomy of cohabitants and decision-making. We can conclude that the promotion of the participation of these patients in the studies, either instrumentally, or to contextualize the results better, or – still – to enrich the authors’ conclusions, can intentionally or unintentionally contribute to the greater visibility of the problem that involves being a SCD cohabitant for the subjects and their relatives. The duty to analyze intersectionally the entire context of the patient and his family context is also highlighted.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.14284200.v1（source: https://scielo.figshare.com/articles/dataset/The_participation_of_cohabitants_with_sickle_cell_disease_in_health_care_a_bibliographic_study/14284200）。