脑瘫青少年正负参与体验影响因素：消费者与健康专业人士德尔菲研究

数据集获取（Figshare）

• 源站标题：Factors impacting positive and negative participation of young people with cerebral palsy: a Delphi study of consumers and health professionals
• DOI：10.6084/m9.figshare.22774587.v1
• 发布日期：2023-05-06
• 文件数：3 个
• 文件总体积：359.22 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Factors_impacting_positive_and_negative_participation_of_young_people_with_cerebral_palsy_a_Delphi_study_of_consumers_and_health_professionals/22774587

命令行下载

curl -L -o "idre_a_2194062_sm6501.pdf" "https://ndownloader.figshare.com/files/40463154"
curl -L -o "idre_a_2194062_sm6500.pdf" "https://ndownloader.figshare.com/files/40463157"
curl -L -o "idre_a_2194062_sm6499.pdf" "https://ndownloader.figshare.com/files/40463160"

文件清单

• idre_a_2194062_sm6501.pdf（146.99 KB）
• idre_a_2194062_sm6500.pdf（145.80 KB）
• idre_a_2194062_sm6499.pdf（66.43 KB）

文件总体积 359.22 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

To identify specific factors influencing the participation experiences of young people with cerebral palsy (CP) aged 15 to 26 years.
A three-round Delphi survey study design was used. Consumers (young people with CP and caregivers) and health professionals were asked to generate and then rate items influencing positive and negative participation experiences. Qualitative content analysis and descriptive statistics were used to classify items across the family of Participation-Related Constructs (fPRC) framework.
Sixty-eight participants completed Round I (25 consumers, 43 health professionals). Round II resulted in a consensus for all but two items, with Round III not required. The fPRC construct with the most items rated as extremely important for positive participation experiences was Environment–Availability, and for negative participation, experiences were Environment-Acceptability for both adolescents and young adults.
A consensus was reached on the most important items influencing the positive and negative participation experiences of young people with CP. These items should be prioritised when developing support services and allocating funding to improve the participation experiences of young people with CP.

This study is reporting consumer and professional consensus on the factors promoting positive and negative participation for young people with cerebral palsy.
Ensuring availability of appropriate activities and services is extremely important for enabling positive participation experiences.
Promoting acceptable attitudes of others is extremely important for alleviating negative participation experiences.

This study is reporting consumer and professional consensus on the factors promoting positive and negative participation for young people with cerebral palsy.
Ensuring availability of appropriate activities and services is extremely important for enabling positive participation experiences.
Promoting acceptable attitudes of others is extremely important for alleviating negative participation experiences.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.22774587.v1（source: https://tandf.figshare.com/articles/dataset/Factors_impacting_positive_and_negative_participation_of_young_people_with_cerebral_palsy_a_Delphi_study_of_consumers_and_health_professionals/22774587）。