主题与子主题数据集
包含终末期心力衰竭患者及其家属与医生讨论死亡临近的纵向访谈数据，用于分析沟通体验与应对策略。
基本信息
资源简介
主题与子主题数据集
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 1 个文件、合计 5.63 KB，主题涵盖 practical planning often、often take place、interviewed three times、discussed terminal illness、clear message helps，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Themes and subthemes.》。源站首次发布：2025-07-23。
【数据内容】
源站原始描述：Aims Discussions about severe illness and the coming death do not often take place with patients with heart failure and their family. We therefore aimed to investigate how patients with end-stage heart failure and their family who discussed terminal illness and the imminence of death with a physician, experienced such communication, how they handled life emotionally and practically after said discussions, and if/how this changed over time. Methods A longitudinal interview study. Ten patients wit…
【数据结构与技术规格】
文件数 1 个，合计 5.63 KB。Table 3.xls：application/vnd.ms-excel，5.63 KB。数据集 DOI：10.1371/journal.pone.0328993.t003。
【主题与分类】
源站学科分类：Cell Biology、Biological Sciences not elsewhere classified、Developmental Biology、Cancer、Science Policy。主题标签：practical planning often、often take place、interviewed three times、discussed terminal illness、clear message helps、longitudinal interview study、communicating severe illness、clear message hurts、stage heart failure、said &# 8221。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Themes_and_subthemes_/29629454
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Pohl, Annika; Liljeroos, Maria; Jaarsma, Tiny (2025). Themes and subthemes.. PLOS ONE. Dataset
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Themes and subthemes.
- DOI：10.1371/journal.pone.0328993.t003
- 发布日期：2025-07-23
- 文件数：1 个
- 文件总体积：5.63 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Themes_and_subthemes_/29629454
命令行下载
curl -L -o "Table 3.xls" "https://ndownloader.figshare.com/files/56495753"
文件清单
Table 3.xls（5.63 KB）
文件总体积 5.63 KB（源站 API 实测）。
数据说明
Aims
Discussions about severe illness and the coming death do not often take place with patients with heart failure and their family. We therefore aimed to investigate how patients with end-stage heart failure and their family who discussed terminal illness and the imminence of death with a physician, experienced such communication, how they handled life emotionally and practically after said discussions, and if/how this changed over time.
Methods
A longitudinal interview study. Ten patients with end-stage heart failure and their closest kin were visited by a physician at home and discussed terminal illness during one visit and the imminence of death during another visit. They were interviewed three times about how they experienced the communication and how they handled life in this situation and in relation to the discussions. The interviews were analysed using qualitative thematic analysis by Braun and Clarke.
Findings
Two main themes and five subthemes were found. The first theme was ‘an honest and clear message hurts, but it would be worse if nothing was said’, and the subthemes included information on the experiences of communication, the desired level of communication by patients and family members and factors facilitating communication. The second theme was ‘A clear message helps in handling life’ with the subthemes of coping psychologically and practically. The findings indicate that for some patients and family members it was hard to have discussions about end-stage heart failure and the imminence of death. However, they found the discussions important and were happy that the information was not withheld from them. The discussions helped in handling life and most patients and family seemed to have found a way to accept and handle the situation. Practical planning often did not start until they heard from the physician that death could come soon.
Conclusion
This study confirms that patients and family members want and appreciate discussions about severe illness and the imminence of death and find them important. This can encourage physicians to change behaviour and engage in honest discussions, and to educate and train colleagues to do the same.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0328993.t003（source: https://plos.figshare.com/articles/dataset/Themes_and_subthemes_/29629454）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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