自闭症健康通行证调查视图
193名英国自闭症孕产期人士关于自闭症健康通行证认知与使用障碍的在线调查数据。
基本信息
资源简介
自闭症健康通行证调查视图
【数据集背景】
本数据集源站标题为《Views of Autism Health Passports.》。配套论文《“I am afraid of being treated badly if I show it”: A cross-sectional study of healthcare accessibility and Autism Health Passports among UK Autistic adults》发表于 PLOS ONE（2024），DOI：10.1371/journal.pone.0303873。源站首次发布：2024-05-29。
【数据内容】
源站原始描述：Background Autistic people are more likely to experience stigma, communication barriers and anxiety during healthcare. Autism Health Passports (AHPs) are a communication tool that aim to provide information about healthcare needs in a standardised way. They are recommended in research and policy to improve healthcare quality. Aim To explore views and experiences of AHPs among Autistic people from the UK who have been pregnant. Methods We developed an online survey using a combination of open and…
【数据结构与技术规格】
文件数 1 个，合计 9.73 KB。Table 4.xls：application/vnd.ms-excel，9.73 KB。数据集 DOI：10.1371/journal.pone.0303873.t004。
【主题与分类】
源站学科分类：Molecular Biology、Neuroscience、Biotechnology、Developmental Biology、Cancer、Science Policy。主题标签：reducing health inequalities、reduce health inequalities、p >&# 8220、closed questions focused、autism health passports、almost three quarters、&# 8221 ;:、online survey using、participants using one、193 autistic respondents。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Views_of_Autism_Health_Passports_/25926381
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Grant, Aimee; Turner, Sarah; Shaw, Sebastian C. K.; Williams, Kathryn; Morgan, Hayley; Ellis, Rebecca; et al. (2024). Views of Autism Health Passports.. PLOS ONE. Dataset
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Views of Autism Health Passports.
- DOI：10.1371/journal.pone.0303873.t004
- 发布日期：2024-05-29
- 文件数：1 个
- 文件总体积：9.73 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Views_of_Autism_Health_Passports_/25926381
命令行下载
curl -L -o "Table 4.xls" "https://ndownloader.figshare.com/files/46654560"
文件清单
Table 4.xls（9.73 KB）
文件总体积 9.73 KB（源站 API 实测）。
数据说明
Background
Autistic people are more likely to experience stigma, communication barriers and anxiety during healthcare. Autism Health Passports (AHPs) are a communication tool that aim to provide information about healthcare needs in a standardised way. They are recommended in research and policy to improve healthcare quality.
Aim
To explore views and experiences of AHPs among Autistic people from the UK who have been pregnant.
Methods
We developed an online survey using a combination of open and closed questions focused on healthcare impairments and views and experiences of AHPs. Data were anlaysed using descriptive statistics, Kruskal-Wallis tests, and content analysis.
Findings
Of 193 Autistic respondents (54% diagnosed, 22% undergoing diagnosis and 24% self-identifying), over 80% reported anxiety and masking during healthcare always or most of the time. Some significant differences were identified in healthcare (in)accessibility by diagnostic status. Only 4% of participants knew a lot about AHPs, with 1.5% of participants using one at least half of the time. Almost three quarters of respondents had not previously seen an AHP. Open text responses indicated that the biggest barrier to using an AHP was a belief that health professionals would discriminate against Autistic patients. Additional barriers included staff lack of familiarity with AHPs and respondents expecting a negative response to producing an AHP.
Conclusions
Our findings suggest that AHPs are not reducing health inequalities for Autistic adults who have been pregnant. Alternative solutions are needed to reduce health inequalities for Autistic people.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0303873.t004（source: https://plos.figshare.com/articles/dataset/Views_of_Autism_Health_Passports_/25926381）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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