患者焦点小组指南
聚焦心力衰竭患者、临床医生和照顾者的焦点小组指南，探讨自我管理教育需求，数据模态为文本。
基本信息
资源简介
患者焦点小组指南
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 1 个文件、合计 5.63 KB，主题涵盖 seven key themes、optimise medication adherence、engaging family members、exploratory qualitative study、unmet educational needs，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Patient focus group guide.》。源站首次发布：2025-02-07。
【数据内容】
源站原始描述：This is an exploratory qualitative study of cardiovascular clinicians, people living with heart failure (HF), and their caregivers. The aim was to understand the unmet educational needs in self-management for adults living with HF. Four focus groups were conducted face-to-face or via videoconference, recorded, and transcribed verbatim for thematic analysis. A total of 23 participants were recruited and included in analyses (clinicians n = 13; adults with HF n = 7; caregivers n = 3). The focus gr…
【数据结构与技术规格】
文件数 1 个，合计 5.63 KB。Table 1.xls：application/vnd.ms-excel，5.63 KB。数据集 DOI：10.1371/journal.pone.0314059.t001。
【主题与分类】
源站学科分类：Biological Sciences not elsewhere classified、Cancer、Science Policy。主题标签：seven key themes、optimise medication adherence、engaging family members、exploratory qualitative study、unmet educational needs、support patient needs、four focus groups、patients diverse needs、educational needs、focus groups。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Patient_focus_group_guide_/28370587
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Ferguson, Caleb; William, Scott; Allida, Sabine; Macdonald, Peter S.; Kilov, Gary; Chow, Clara K.; et al. (2025). Patient focus group guide.. PLOS ONE. Dataset
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Patient focus group guide.
- DOI：10.1371/journal.pone.0314059.t001
- 发布日期：2025-02-07
- 文件数：1 个
- 文件总体积：5.63 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Patient_focus_group_guide_/28370587
命令行下载
curl -L -o "Table 1.xls" "https://ndownloader.figshare.com/files/52205779"
文件清单
Table 1.xls（5.63 KB）
文件总体积 5.63 KB（源站 API 实测）。
数据说明
This is an exploratory qualitative study of cardiovascular clinicians, people living with heart failure (HF), and their caregivers. The aim was to understand the unmet educational needs in self-management for adults living with HF. Four focus groups were conducted face-to-face or via videoconference, recorded, and transcribed verbatim for thematic analysis. A total of 23 participants were recruited and included in analyses (clinicians n = 13; adults with HF n = 7; caregivers n = 3). The focus groups were on average 81 (range 73 to 91) minutes in duration. Seven key themes were identified which were: (i) Understanding and reinforcing the signs and symptoms, self-management, medications, and prognosis and severity of HF; (ii) Providing concise and timely education; (iii) Building trust and relationships; (iv) Accessibility of education to support patient needs; (v) Engaging family members and informal caregivers; (vi) Tailoring education to patients diverse needs; and (vii) Navigating the health system and dealing with continuity of care. There were several unmet educational needs for people living with heart failure and their caregivers. Providing patient-centred education is critical to developing understanding and reinforcing the signs and symptoms, prognosis, and severity of heart failure, to underpin self-management and optimise medication adherence. Clinicians, patients, and their caregivers provided several suggestions for improvement, such as the importance of providing concise and timely education and building trust and relationships between clinicians and patients. Priorities for education improvement were also provided, including regional and rural considerations; engaging informal family caregivers; tailoring to culturally and linguistically diverse and indigenous peoples, navigating the health system and ensuring continuity of care.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0314059.t001（source: https://plos.figshare.com/articles/dataset/Patient_focus_group_guide_/28370587）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
⚡️ 需要数据支持或标注服务？立即联系我们获取专业方案。
