慢性心力衰竭患者对疾病和治疗的理解与信念：来自乌干达的定性纵向研究

数据集获取（Figshare）

• 源站标题：‘I think my body has become addicted to those tablets’. Chronic heart failure patients’ understanding of and beliefs about their illness and its treatment: A qualitative longitudinal study from Uganda
• DOI：10.1371/journal.pone.0182876
• 发布日期：2017-09-28
• 文件数：2 个
• 文件总体积：193.60 KB
• 源站页面：https://plos.figshare.com/articles/dataset/_I_think_my_body_has_become_addicted_to_those_tablets_Chronic_heart_failure_patients_understanding_of_and_beliefs_about_their_illness_and_its_treatment_A_qualitative_longitudinal_study_from_Uganda/5451601

命令行下载

curl -L -o "pone.0182876.s001.odt" "https://ndownloader.figshare.com/files/9426958"
curl -L -o "pone.0182876.s002.odt" "https://ndownloader.figshare.com/files/9426964"

文件清单

• pone.0182876.s001.odt（12.18 KB）
• pone.0182876.s002.odt（181.41 KB）

文件总体积 193.60 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Background
Patients with heart failure in Uganda present for health care with advanced structural heart disease, have repeated hospitalizations and poorly controlled disease symptoms. The reasons for these are unclear. Literature from other settings shows that patients’ understanding of their illness and their beliefs influence their health related behaviour. The study aimed to explore the beliefs of patients with heart failure, their understanding of their illness and its treatment, and how this influenced their health related behaviour to inform future health education programs, information and palliative care services.
Methods
Serial qualitative in-depth interviews were conducted with Heart Failure patients who were purposively sampled and recruited in Mulago National Referral Hospital until thematic saturation was reached. In-depth interviews were conducted at three time points over the course of their illness with intervals of 3 months between interviews. A grounded theory approach was used in data analysis. The University of Edinburgh ethics committee, Mulago Hospital Research Ethics committee and the Uganda National Council of Science and Technology (Reference numbers D/GC/178; MREC 33, SS 3083 respectively) approved the research.
Results
A total of 40 face to face qualitative longitudinal interviews (36-patient alone, 4 paired-patient and family carer), were conducted with 21 patients. The findings revealed that heart failure patients were unaware of the symptoms of the illness and their definition of illness differed from that of health professionals. Patients understood their diagnosis, cause of illness, prognosis and the importance of the medicines differently from health professionals, and had insufficient information on self-care. Lay beliefs were used to explain many aspects of the illness and treatments. All these influenced where patients sought care and their adherence to treatment, self-care and follow up leading to uncontrolled disease.
Conclusion
There is a high level of health illiteracy among heart failure patients in Uganda. Patients rely on lay beliefs to make health decisions and medical information is often miscomprehended. There is an

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0182876（source: https://plos.figshare.com/articles/dataset/_I_think_my_body_has_become_addicted_to_those_tablets_Chronic_heart_failure_patients_understanding_of_and_beliefs_about_their_illness_and_its_treatment_A_qualitative_longitudinal_study_from_Uganda/5451601）。