“就像有第二份工作”：不孕症情感负担及协调护理需求的定性见解

数据集获取（Figshare）

• 源站标题：“It’s like having a second job”: qualitative insights into the emotional burden of infertility and the need for coordinated care
• DOI：10.6084/m9.figshare.29085323.v1
• 发布日期：2025-05-16
• 文件数：2 个
• 文件总体积：92.59 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/_It_s_like_having_a_second_job_qualitative_insights_into_the_emotional_burden_of_infertility_and_the_need_for_coordinated_care/29085323

命令行下载

curl -L -o "ipob_a_2505589_sm3317.docx" "https://ndownloader.figshare.com/files/54590537"
curl -L -o "ipob_a_2505589_sm3316.docx" "https://ndownloader.figshare.com/files/54590540"

文件清单

• ipob_a_2505589_sm3317.docx（51.46 KB）
• ipob_a_2505589_sm3316.docx（41.13 KB）

文件总体积 92.59 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Infertility, affecting one in six individuals worldwide, poses substantial emotional and physical challenges. Its impact on quality of life (QoL), mental health and social relationships is well documented. However, qualitative insights into the lived experiences of those affected remain limited, as do the perspectives of health professionals involved in their care. This study presents qualitative findings from a mixed-method approach. Data were collected through 23 semi-structured interviews with 26 affected individuals and three focus group discussions with 20 healthcare professionals. The results underscore the multifaceted burden of infertility, including emotional distress, relationship strain and a pervasive sense of social exclusion. Participants expressed a clear need for more empathetic and individualized care, while healthcare professionals pointed to structural barriers. The study also identified a lack of societal recognition for infertility and the complex challenges. In some narratives, spirituality emerged as a personal coping resource – though one that is often overlooked or insufficiently addressed in clinical practice. Key recommendations include the expansion of peer support networks, public awareness raising, flexible treatment models and interprofessional collaboration. Future research should evaluate the effectiveness of peer support systems and interdisciplinary care models in addressing the complex and diverse needs of individuals affected by infertility.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.29085323.v1（source: https://tandf.figshare.com/articles/dataset/_It_s_like_having_a_second_job_qualitative_insights_into_the_emotional_burden_of_infertility_and_the_need_for_coordinated_care/29085323）。