大疱性表皮松解症患者家属和照护者教育超媒体的开发与验证

数据集获取（Figshare）

• 源站标题：Development and validation of educational hypermedia for family members and caregivers of people with epidermolysis bullosa
• DOI：10.6084/m9.figshare.20495705.v1
• 发布日期：2022-08-16
• 文件数：6 个
• 文件总体积：6.40 MB
• 源站页面：https://scielo.figshare.com/articles/dataset/Development_and_validation_of_educational_hypermedia_for_family_members_and_caregivers_of_people_with_epidermolysis_bullosa/20495705

命令行下载

curl -L -o "52b172bd1ef71d736cc92f1997b5395b887d698b.tif" "https://ndownloader.figshare.com/files/36688367"
curl -L -o "f61ff1f01f1cbf8184ad83fee72ca7fcd9348d2c.png" "https://ndownloader.figshare.com/files/36688370"
curl -L -o "3129922b27c765f7c303206ce8e7fc4ea9c5e43d.jpg" "https://ndownloader.figshare.com/files/36688373"
curl -L -o "334571bac5eef79dc36d4f10e96795a1a15c03bd.tif" "https://ndownloader.figshare.com/files/36688376"
curl -L -o "6f12eb4469a2a0625e4ef9cd35b46a902f79220d.png" "https://ndownloader.figshare.com/files/36688379"
curl -L -o "16a5aca4770c7f2ed72c8f62e2671b0675d984ea.jpg" "https://ndownloader.figshare.com/files/36688382"

文件清单

• 52b172bd1ef71d736cc92f1997b5395b887d698b.tif（2.33 MB）
• f61ff1f01f1cbf8184ad83fee72ca7fcd9348d2c.png（859.24 KB）
• 3129922b27c765f7c303206ce8e7fc4ea9c5e43d.jpg（6.59 KB）
• 334571bac5eef79dc36d4f10e96795a1a15c03bd.tif（2.34 MB）
• 6f12eb4469a2a0625e4ef9cd35b46a902f79220d.png（860.32 KB）
• 16a5aca4770c7f2ed72c8f62e2671b0675d984ea.jpg（6.71 KB）

文件总体积 6.40 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

ABSTRACT Objectives: to develop educational hypermedia to support the care of people with epidermolysis bullosa; and validate its content, functionality, usability, and efficiency. Methods: methodological study, based on five phases: analysis and planning; modeling; implementation; evaluation; and distribution. Hypermedia was evaluated by expert judges, using the content validity index, index of agreement, and exact binomial distribution test, considering p > 0.05 and 0.80 agreement ratio to estimate the statistical reliability of CVI and IOA. Results: in the validation with the judges, hypermedia presented excellent indices of total content validity (CVIt=0.99) and agreement for functionality, usability, and efficiency (IOA=100%), with p > 0.05 in all evaluated items. Conclusions: the developed hypermedia was considered adequate, with good screens, descriptions, and animations, presenting itself clearly and objectively to be used by patients with epidermolysis bullosa and their family members/caregivers.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.20495705.v1（source: https://scielo.figshare.com/articles/dataset/Development_and_validation_of_educational_hypermedia_for_family_members_and_caregivers_of_people_with_epidermolysis_bullosa/20495705）。