参与者特征数据集(肺纤维化临终关怀研究)
本数据集包含医疗专业人员关于肺纤维化患者临终关怀沟通需求、促进因素和障碍的定性访谈数据。

基本信息
资源简介
参与者特征数据集(肺纤维化临终关怀研究)
【一句话概览】
本数据集是 figshare 公开的文本数据集,收录 1 个文件、合计 5.63 KB,主题涵盖 optimal medication treatment、different approaches within、provide optimal care、advance care planning、seven individual semi,可用于医学自然语言处理(实体识别、信息抽取等),CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Participants characteristics.》。源站首次发布:2025-12-12。
【数据内容】
源站原始描述:Background Progressive pulmonary fibrosis is a lethal disease with a survival of 3–5 years with optimal medication treatment. Palliative care and advance care planning are therefore receiving increasing attention in the literature. However, structural implementation in clinical practice is still lacking. The aim of this study was to explore the needs, facilitators, and barriers for communication on the topic of end-of-life preferences of patients from the perspective of healthcare professionals.…
中文译文(机器翻译,仅供快速理解,请以原文为准):背景 进行性肺纤维化是一种致死性疾病,即使接受最佳药物治疗,生存期也仅为3~5年。因此,姑息治疗和预先护理规划在文献中受到越来越多的关注。然而,在临床实践中仍缺乏结构化的实施。本研究旨在从医疗专业人员的角度探讨就患者临终偏好这一主题进行沟通的需求、促进因素和障碍。 方法 采用通用定性研究方法,对医疗专业人员进行焦点小组访谈和个人半结构化访谈。数据收集与分析以迭代方式进行。依照Braun和Clarke的方法进行主题分析。 结果 共进行了三个焦点小组访谈和七次个人半结构化访谈。生成三个主题:(1)对姑息治疗缺乏愿景,导致同一诊所内采取不同的方法,并显示出优化协作的必要性;(2)学习驱动型环境对于支持医疗专业人员技能和知识的重要性;(3)个体专业人员在发展技能和知识中的核心作用。 结论/讨论 本研究强调了姑息治疗中行为和组织变革的重要性,以优化探索肺纤维化患者临终关怀的价值观、偏好和需求的对话。利用医疗专业人员提供最佳护理的共同动力,将这些发现整合到培训和辅导项目中,可以进一步促进姑息治疗中以患者为中心的方法。
【数据结构与技术规格】
文件数 1 个,合计 5.63 KB。Table 1.xls:application/vnd.ms-excel,5.63 KB。数据集 DOI:10.1371/journal.pone.0338624.t001。
【主题与分类】
源站学科分类:Cell Biology、Biological Sciences not elsewhere classified、Cancer、Infectious Diseases。主题标签:optimal medication treatment、different approaches within、provide optimal care、advance care planning、seven individual semi、3 &# 8211、generic qualitative study、life care preferences、life care、palliative care。
【适用方向】
文本类数据可用于医学自然语言处理,如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面:https://plos.figshare.com/articles/dataset/Participants_characteristics_/30872079
使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。
规范引用:Trapman, Lian; Dijksman, Lea M; Grutters, Jan C.; Teunissen, Saskia C.C.M.; de Graaf, Everlien (2025). Participants characteristics.. PLOS ONE. Dataset
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务(收技术服务费,非数据销售)
暂未开放当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取(Figshare)
- 源站标题:Participants characteristics.
- DOI:10.1371/journal.pone.0338624.t001
- 发布日期:2025-12-12
- 文件数:1 个
- 文件总体积:5.63 KB
- 源站页面:https://plos.figshare.com/articles/dataset/Participants_characteristics_/30872079
命令行下载
curl -L -o "Table 1.xls" "https://ndownloader.figshare.com/files/60328521"
文件清单
Table 1.xls(5.63 KB)
文件总体积 5.63 KB(源站 API 实测)。
数据加载示例(图像类)
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
Background
Progressive pulmonary fibrosis is a lethal disease with a survival of 3–5 years with optimal medication treatment. Palliative care and advance care planning are therefore receiving increasing attention in the literature. However, structural implementation in clinical practice is still lacking. The aim of this study was to explore the needs, facilitators, and barriers for communication on the topic of end-of-life preferences of patients from the perspective of healthcare professionals.
Methods
A generic qualitative study was performed with focus groups and individual semi structured interviews with healthcare professionals. Data collection and analysis were performed iteratively. A thematic analysis was performed, following the methods of Braun and Clarke.
Results
Three focus groups and seven individual semi-structured interviews were conducted. Three themes were generated: (1) a lack of vision on palliative care, resulting in different approaches within the same clinic and showing the need for optimization of collaboration; (2) the importance of a learning-driven environment to support healthcare professionals skills and knowledge; and (3), the central role of the individual professional in developing skills and knowledge.
Conclusions/discussion
This study underscores the importance of behavioral and organizational change in palliative care to optimize conversations exploring values, preferences, and needs for end-of-life care for patients with pulmonary fibrosis. Leveraging the shared motivation of healthcare professionals to provide optimal care, integrating these findings into training and coaching programs can further enhance patient-centered approach in palliative care.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0338624.t001(source: https://plos.figshare.com/articles/dataset/Participants_characteristics_/30872079)。
数据缺失?
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