问卷报告听力与医疗记录验证：瑞士儿童癌症幸存者研究报告

数据集获取（Figshare）

• 源站标题：Validation of questionnaire-reported hearing with medical records: A report from the Swiss Childhood Cancer Survivor Study
• DOI：10.1371/journal.pone.0174479
• 发布日期：2017-03-23
• 文件数：5 个
• 文件总体积：1.44 MB
• 源站页面：https://plos.figshare.com/articles/dataset/Validation_of_questionnaire-reported_hearing_with_medical_records_A_report_from_the_Swiss_Childhood_Cancer_Survivor_Study/4783825

命令行下载

curl -L -o "S1 Fig.tif" "https://ndownloader.figshare.com/files/7867255"
curl -L -o "S2 Fig.tif" "https://ndownloader.figshare.com/files/7867282"
curl -L -o "S3 Fig.tif" "https://ndownloader.figshare.com/files/7867300"
curl -L -o "S1 Table.pdf" "https://ndownloader.figshare.com/files/7867321"
curl -L -o "S2 Table.pdf" "https://ndownloader.figshare.com/files/7867339"

文件清单

• S1 Fig.tif（13.00 KB）
• S2 Fig.tif（583.41 KB）
• S3 Fig.tif（619.59 KB）
• S1 Table.pdf（185.35 KB）
• S2 Table.pdf（36.71 KB）

文件总体积 1.44 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Background
Hearing loss is a potential late effect after childhood cancer. Questionnaires are often used to assess hearing in large cohorts of childhood cancer survivors and it is important to know if they can provide valid measures of hearing loss. We therefore assessed agreement and validity of questionnaire-reported hearing in childhood cancer survivors using medical records as reference.
Procedure
In this validation study, we studied 361 survivors of childhood cancer from the Swiss Childhood Cancer Survivor Study (SCCSS) who had been diagnosed after 1989 and had been exposed to ototoxic cancer treatment. Questionnaire-reported hearing was compared to the information in medical records. Hearing loss was defined as ≥ grade 1 according to the SIOP Boston Ototoxicity Scale. We assessed agreement and validity of questionnaire-reported hearing overall and stratified by questionnaire respondents (survivor or parent), sociodemographic characteristics, time between follow-up and questionnaire and severity of hearing loss.
Results
Questionnaire reports agreed with medical records in 85% of respondents (kappa 0.62), normal hearing was correctly assessed in 92% of those with normal hearing (n = 249), and hearing loss was correctly assessed in 69% of those with hearing loss (n = 112). Sensitivity of the questionnaires was 92%, 74%, and 39% for assessment of severe, moderate and mild bilateral hearing loss; and 50%, 33% and 10% for severe, moderate and mild unilateral hearing loss, respectively. Results did not differ by sociodemographic characteristics of the respondents, and survivor- and parent-reports were equally valid.
Conclusions
Questionnaires are a useful tool to assess hearing in large cohorts of childhood cancer survivors, but underestimate mild and unilateral hearing loss. Further research should investigate whether the addition of questions with higher sensitivity for mild degrees of hearing loss could improve the results.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0174479（source: https://plos.figshare.com/articles/dataset/Validation_of_questionnaire-reported_hearing_with_medical_records_A_report_from_the_Swiss_Childhood_Cancer_Survivor_Study/4783825）。