变革建议
关于556名听力损失或耳聋患者在英国NHS中沟通障碍的调查数据，包含评分和开放式回答，用于改进可及性和聋人意识。
基本信息
资源简介
变革建议
【数据集背景】
本数据集源站标题为《Recommendations For Change.》。源站首次发布：2025-05-07。
【数据内容】
源站原始描述：Background Barriers to communication significantly reduce access to health services for people with deafness or hearing loss (PDHL). These barriers contribute to reduced healthcare-seeking behaviour, poorer access to health information, and adverse health outcomes. In response, a multidisciplinary working group of patients, clinicians, researchers, and charity representatives was established to investigate accessibility, communication, and deaf awareness within the United Kingdom’s (UK) National…
【数据结构与技术规格】
文件数 1 个，合计 9.73 KB。Table 2..xls：application/vnd.ms-excel，9.73 KB。数据集 DOI：10.1371/journal.pone.0322850.t002。
【主题与分类】
源站学科分类：Medicine、Biotechnology、Developmental Biology、Cancer、Infectious Diseases。主题标签：united kingdom ’、last 24 months、including 50 parents、always feel like、first deaf person、important information provided、british sign language、adverse health outcomes、accompanied pdhl friends、communication difficulties across。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Recommendations_For_Change_/28949679
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Parmar, Bhavisha; Henshaw, Helen; Howe, Shahad; Dickinson, Ann Marie; Rolfe, Crystal; Le Mere, Philip; et al. (2025). Recommendations For Change.. PLOS ONE. Dataset
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：Recommendations For Change.
- DOI：10.1371/journal.pone.0322850.t002
- 发布日期：2025-05-07
- 文件数：1 个
- 文件总体积：9.73 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Recommendations_For_Change_/28949679
命令行下载
curl -L -o "Table 2..xls" "https://ndownloader.figshare.com/files/54280764"
文件清单
Table 2..xls（9.73 KB）
文件总体积 9.73 KB（源站 API 实测）。
数据说明
Background
Barriers to communication significantly reduce access to health services for people with deafness or hearing loss (PDHL). These barriers contribute to reduced healthcare-seeking behaviour, poorer access to health information, and adverse health outcomes. In response, a multidisciplinary working group of patients, clinicians, researchers, and charity representatives was established to investigate accessibility, communication, and deaf awareness within the United Kingdom’s (UK) National Health Service (NHS).
Methodology
A cross-sectional survey was conducted to explore the communication and accessibility experiences of PDHL NHS patients, and their perceived impact on well-being. The survey used rating scales and open-ended questions and data were analysed using descriptive statistics and thematic analysis. The survey was made available in British Sign Language (BSL).
Results
The online survey was completed by 556 PDHL, including 50 parents, carers, or family members who had accompanied PDHL friends or relatives to NHS appointments. All respondents had used NHS services within the last 24 months, with 10% identifying BSL as their preferred language. Qualitative analysis of the open-ended responses generated three key themes: 1) Accessibility challenges, 2) Impact of communication difficulties across the service pathway, and 3) Lack of consistent, effective deaf-aware communication. Overall, 64.4% of PDHL NHS patients reported missing 50% or more of the important information provided during their NHS appointments, and 32% were satisfied with the communication skills of healthcare staff.
Conclusion
This study presents the largest UK-wide dataset of its kind, and findings highlight the widespread non-compliance with the legally mandated Accessible Information Standards (AIS) within NHS services. The communication barriers identified in this study have significant and long-term implications for the well-being of PDHL patients. Utilising these findings, our working group has developed a set of ‘Recommendations For Change’ to improve deaf awareness and effective communication across the NHS.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0322850.t002（source: https://plos.figshare.com/articles/dataset/Recommendations_For_Change_/28949679）。
数据缺失？
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