抽动秽语综合征患者医疗服务国际调查数据表

数据集获取（Figshare）

• 源站标题：Data_Sheet_1_An International Survey of Health Care Services Available to Patients With Tourette Syndrome.docx
• DOI：10.3389/fpsyt.2021.621874.s001
• 发布日期：2021-02-26
• 文件数：1 个
• 文件总体积：62.54 KB
• 源站页面：https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_An_International_Survey_of_Health_Care_Services_Available_to_Patients_With_Tourette_Syndrome_docx/14123219

命令行下载

curl -L -o "Data_Sheet_1_An International Survey of Health Care Services Available to Patients With Tourette Syndrome.docx" "https://ndownloader.figshare.com/files/26633156"

文件清单

• Data_Sheet_1_An International Survey of Health Care Services Available to Patients With Tourette Syndrome.docx（62.54 KB）

文件总体积 62.54 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Objective: Tourette syndrome (TS) is a neuropsychiatric disorder that is highly associated with several comorbidities. Given the complex and multifaceted nature of TS, the condition is managed by a wide variety of practitioners in different disciplines. The goal of this study was to investigate health service delivery and care practices by clinicians who see TS patients across different geographic settings internationally.
Methods: A comprehensive questionnaire was developed to assess clinical care resources for patients with TS and was sent to clinicians in Canada (CA), the United States (US), Europe (EU), and the United Kingdom (UK). Responses were compared quantitatively between geographic regions.
Results: The majority of respondents, regardless of region, reported that fewer than 40% of their case-load are patients with tics. The accessibility of TS services varied among regions, as indicated by differences in wait times, telemedicine offerings, comorbidity management and the availability of behavioral therapies. First-line pharmacotherapy preferences varied among physicians in different geographical regions with CA respondents preferring alpha-2-adrenergic agonists and respondents from the UK and EU preferring dopamine receptor antagonists.
Discussion: The results suggest that there is a scarcity of specialized TS clinics, potentially making access to services challenging, especially for patients newly diagnosed with TS. Differences in regional pharmacotherapeutic preferences are reflected in various published treatment guidelines in EU and North America. The lack of dedicated specialists and telemedicine availability, coupled with differences in comorbidity management, highlight the need for interprofessional care and holistic management to improve health care delivery to patients with TS.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fpsyt.2021.621874.s001（source: https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_An_International_Survey_of_Health_Care_Services_Available_to_Patients_With_Tourette_Syndrome_docx/14123219）。