臂丛神经出生损伤功能与健康视角差异数据集
包含臂丛神经出生损伤患者、父母与医疗专业人员对ICF模型中功能和健康结果重要性评分的表格数据集,用于比较不同群体视角差异。

基本信息
资源简介
臂丛神经出生损伤功能与健康视角差异数据集
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集,收录 2 个文件、合计 273.41 KB,主题涵盖 Brachial plexus birth injury、patient perspective、brachial plexus surgery、outcome evaluation、pain,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Differences in the perspectives of functioning and health in the ICF model between patients with brachial plexus birth injury and their parents versus healthcare professionals》。配套论文《Differences in the perspectives of functioning and health in the ICF model between patients with brachial plexus birth injury and their parents versus healthcare professionals》发表于 Disability and Rehabilitation(2022),DOI:10.1080/09638288.2022.2075475。源站首次发布:2022-05-25。
【数据内容】
源站原始描述:To explore and compare the perspectives of patients and their parents (PPs) with a brachial plexus birth injury (BPBI) with those of health care professionals (HCPs). We conducted a study using a questionnaire among PPs and HCPs. Importance of different outcome categories was scored on a Likert scale. Items were linked to corresponding categories of the International Classification of Functioning, Disability and Health. Means were compared using analysis of variance (ANOVA). Data were collected…
【数据结构与技术规格】
文件数 2 个,合计 273.41 KB。idre_a_2075475_sm9433.pdf:application/pdf,120.16 KB。idre_a_2075475_sm9432.pdf:application/pdf,153.25 KB。数据集 DOI:10.6084/m9.figshare.19862313.v1。
【主题与分类】
源站学科分类:Medicine、Biotechnology、Environmental Sciences not elsewhere classified、Sociology、Biological Sciences not elsewhere classified、Science Policy。主题标签:Brachial plexus birth injury、patient perspective、brachial plexus surgery、outcome evaluation、pain。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面:https://tandf.figshare.com/articles/dataset/Differences_in_the_perspectives_of_functioning_and_health_in_the_ICF_model_between_patients_with_brachial_plexus_birth_injury_and_their_parents_versus_healthcare_professionals/19862313
使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。
规范引用:Differences in the perspectives of functioning and health in the ICF model between patients with brachial plexus birth injury and their parents versus healthcare professionals. Taylor & Francis. Sarac, Cigdem; Nelissen, Rob G. H. H.; van der Holst, Menno; Malessy, Martijn J. A.; Pondaag, Willem
【使用注意】
· 源站最后修改于 2023-06-01,引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务(收技术服务费,非数据销售)
暂未开放当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取(Figshare)
- 源站标题:Differences in the perspectives of functioning and health in the ICF model between patients with brachial plexus birth injury and their parents versus healthcare professionals
- DOI:10.6084/m9.figshare.19862313.v1
- 发布日期:2022-05-25
- 文件数:2 个
- 文件总体积:273.41 KB
- 源站页面:https://tandf.figshare.com/articles/dataset/Differences_in_the_perspectives_of_functioning_and_health_in_the_ICF_model_between_patients_with_brachial_plexus_birth_injury_and_their_parents_versus_healthcare_professionals/19862313
命令行下载
curl -L -o "idre_a_2075475_sm9433.pdf" "https://ndownloader.figshare.com/files/35278977"
curl -L -o "idre_a_2075475_sm9432.pdf" "https://ndownloader.figshare.com/files/35278980"
文件清单
idre_a_2075475_sm9433.pdf(120.16 KB)idre_a_2075475_sm9432.pdf(153.25 KB)
文件总体积 273.41 KB(源站 API 实测)。
数据加载示例(图像类)
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
To explore and compare the perspectives of patients and their parents (PPs) with a brachial plexus birth injury (BPBI) with those of health care professionals (HCPs).
We conducted a study using a questionnaire among PPs and HCPs. Importance of different outcome categories was scored on a Likert scale. Items were linked to corresponding categories of the International Classification of Functioning, Disability and Health. Means were compared using analysis of variance (ANOVA).
Data were collected from 184 patients and 65 HCPs. We found a difference in 7/14 outcome categories between joint PP groups and HCPs. Parents scored outcome evaluation categories as more important than patients, categories filled out together by patient and parent scored in between (p Outcome assessment in the domains “Activities and participation” and “Environmental factors” was rated as important by both PPs and HCPs. Evaluation of pain was more often scored as important by PPs. Different domains seem to be underestimated by HCPs and need more attention during consultation.
Implications for rehabilitation
The importance of outcome evaluation concerning “Pain”, “Interaction with peers”, and “Interaction with medical and paramedical specialists” should be taken into account in the rehabilitation for this specific group of patients and their parents (PPs).
Comparison of perspectives on functioning between brachial plexus birth injury (BPBI) PPs and health care professionals.
Outcome assessment in domains “Activities and participation” and “Environmental factors” is important.
Health care professionals undervalue the importance of pain evaluation in BPBI as compared with PPs.
The importance of outcome evaluation concerning “Pain”, “Interaction with peers”, and “Interaction with medical and paramedical specialists” should be taken into account in the rehabilitation for this specific group of patients and their parents (PPs).
Comparison of perspectives on functioning between brachial plexus birth injury (BPBI) PPs and health care professionals.
Outcome assessment in domains “Activities and participation” and “Environmental factors” is important.
Health care professionals undervalue the im
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.19862313.v1(source: https://tandf.figshare.com/articles/dataset/Differences_in_the_perspectives_of_functioning_and_health_in_the_ICF_model_between_patients_with_brachial_plexus_birth_injury_and_their_parents_versus_healthcare_professionals/19862313)。
数据缺失?
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