日本1型神经纤维瘤病患者特征、治疗模式、医疗资源利用和费用数据集

数据集获取（Figshare）

• 源站标题：Patient characteristics, treatment patterns, healthcare resource utilization, and costs among patients diagnosed with neurofibromatosis type 1 with and without plexiform neurofibromas in Japan
• DOI：10.6084/m9.figshare.25287786.v2
• 发布日期：2024-03-07
• 文件数：2 个
• 文件总体积：365.17 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Patient_characteristics_treatment_patterns_healthcare_resource_utilization_and_costs_among_patients_diagnosed_with_neurofibromatosis_type_1_with_and_without_plexiform_neurofibromas_in_Japan/25287786

命令行下载

curl -L -o "icmo_a_2322698_sm9939.tiff" "https://ndownloader.figshare.com/files/44687229"
curl -L -o "icmo_a_2322698_sm9938.docx" "https://ndownloader.figshare.com/files/44687232"

文件清单

• icmo_a_2322698_sm9939.tiff（330.92 KB）
• icmo_a_2322698_sm9938.docx（34.24 KB）

文件总体积 365.17 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

The objectives of this study were to retrospectively investigate the patient characteristics, treatment patterns, healthcare resource utilization (HCRU), and healthcare costs related to management of neurofibromatosis type 1 (NF1) in Japan.
Cohorts of NF1 patients with or without plexiform neurofibromas (PN) were identified from the Medical Data Vision database in 2008–2019. Baseline characteristics, NF1 medications, HCRU, and associated costs were assessed using descriptive statistics. All-cause HCRU and costs following the first confirmed NF1 diagnosis date were analyzed per patient per year (PPPY) in Japanese Yen (JPY) and United States Dollar (USD).
A total of 4394 NF1 patients without PN and 370 NF1 patients with PN were identified. The mean age was 35.0 and 36.9 years, respectively. The proportion of patients with PN treated with medications was higher than that in patients without PN (except for antirheumatic/immunologic agents). Analgesics/non-steroidal anti-inflammatory drugs were the most frequently prescribed NF1 medications (44.3% and 56.0% in patients without and with PN, respectively), followed by inpatient prescriptions of opioids/opioid-like agents (17.8% and 27.6%, respectively). Inpatient admissions accounted for the highest costs in both cohorts with the average cost PPPY being JPY 2,133,277 (USD 19,861) for patients without PN and JPY 1,052,868 (USD 9802) for patients with PN.
NF1 is treated primarily with supportive care with analgesics/non-steroidal anti-inflammatory drugs being the most frequently prescribed NF1 medications in Japan. Findings underscored the unmet need and substantial economic burden among patients with NF1 and highlighted the need for new treatment options for patients with this disease.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.25287786.v2（source: https://tandf.figshare.com/articles/dataset/Patient_characteristics_treatment_patterns_healthcare_resource_utilization_and_costs_among_patients_diagnosed_with_neurofibromatosis_type_1_with_and_without_plexiform_neurofibromas_in_Japan/25287786）。