医疗专业人员对运动神经元疾病患者无创通气护理最佳实施方式的认知
通过焦点小组探讨医疗专业人员对运动神经元病患者无创通气护理的认知，识别优化护理的关键因素。
基本信息
资源简介
医疗专业人员对运动神经元疾病患者无创通气护理最佳实施方式的认知
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 3 个文件、合计 121.53 KB，主题涵盖 motor neuron disease、amyotrophic lateral sclerosis、mixed methods、thematic analysis、noninvasive ventilation，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Perceptions of healthcare professionals on optimal delivery of noninvasive ventilation care to people living with motor neuron disease》。配套论文《Perceptions of healthcare professionals on optimal delivery of noninvasive ventilation care to people living with motor neuron disease》发表于 Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration（2025），DOI：10.1080/21678421.2025.2539896。项目资助方：The study was funded by a National Institute for Health Research10.13039/501100000272 (NIHR) programme grant for Research for Patient Benefit (PB-PG-1216-20041). CJM is supported by the NIHR Sheffield Biomedical Research Center10.13039/501100018835 and an NIHR Research Professor award (NIHR301648). LSM is supported by a My Name’5 Doddie Foundation Doctoral Fellowship (DOD/14/17) and CMD’S National Institute for Health Research10.13039/501100000272 (NIHR) Professorship (NIHR301648). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health and Social Care.。源站首次发布：2025-08-22。
【数据内容】
源站原始描述：Background: Patients with motor neuron disease (MND) often do not experience the full survival and quality of life benefits of noninvasive ventilation (NIV). Successful delivery of NIV is challenging to multiple healthcare professionals involved in the respiratory care patient journey and considering their perspectives is crucial in order to understand how to deliver optimal care. Objective: To identify the factors that influence NIV delivery in MND from a healthcare professional perspective and…
中文译文（机器翻译，仅供快速理解，请以原文为准）：背景：运动神经元病（MND）患者常常未能从无创通气（NIV）中获得全部的生存期和生活质量获益。对于参与呼吸照护患者旅程的多学科医疗专业人员而言，成功实施NIV具有挑战性，考虑他们的观点对于理解如何提供最优照护至关重要。 目的：从医疗专业人员的视角识别影响MND中NIV实施的因素，并理解如何克服障碍以优化照护。 方法：与在英国为MND患者提供呼吸照护和支持的医疗专业人员以及慈善机构代表进行定性焦点小组讨论。 结果：30名医疗专业人员和3名慈善机构代表参加了5个焦点小组。识别出影响整个呼吸照护路径中NIV实施的一系列因素。这些因素归入四个主要主题：多学科协作；NIV服务结构；专业人员继续教育和培训；以及NIV的良好使用和有效通气。 结论：需要专门的资源来支持服务实施；需要频繁、有资金支持且结构化的培训来支持医疗专业人员提供良好照护；还需要鼓励工作人员采取最佳实践的方法，以便患者获得最好的照护。
【数据结构与技术规格】
文件数 3 个，合计 121.53 KB。iafd_a_2539896_sm2087.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，36.45 KB。iafd_a_2539896_sm2086.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，45.31 KB。iafd_a_2539896_sm2085.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，39.76 KB。数据集 DOI：10.6084/m9.figshare.29967104.v1。
【主题与分类】
源站学科分类：Medicine、Biological Sciences not elsewhere classified、Science Policy。主题标签：motor neuron disease、amyotrophic lateral sclerosis、mixed methods、thematic analysis、noninvasive ventilation、respiratory care。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/Perceptions_of_healthcare_professionals_on_optimal_delivery_of_noninvasive_ventilation_care_to_people_living_with_motor_neuron_disease/29967104
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Perceptions of healthcare professionals on optimal delivery of noninvasive ventilation care to people living with motor neuron disease. Taylor & Francis. Musson, Lucy S; Baxter, Susan K; Norman, Paul; O’Brien, David; Elliott, Mark; Bianchi, Stephen; et al
【使用注意】
· 源站最后修改于 2026-02-05，引用时请注意版本时效。
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使用方式
数据集获取（Figshare）
- 源站标题：Perceptions of healthcare professionals on optimal delivery of noninvasive ventilation care to people living with motor neuron disease
- DOI：10.6084/m9.figshare.29967104.v1
- 发布日期：2025-08-22
- 文件数：3 个
- 文件总体积：121.53 KB
- 源站页面：https://tandf.figshare.com/articles/dataset/Perceptions_of_healthcare_professionals_on_optimal_delivery_of_noninvasive_ventilation_care_to_people_living_with_motor_neuron_disease/29967104
命令行下载
curl -L -o "iafd_a_2539896_sm2087.docx" "https://ndownloader.figshare.com/files/57358475"
curl -L -o "iafd_a_2539896_sm2086.docx" "https://ndownloader.figshare.com/files/57358478"
curl -L -o "iafd_a_2539896_sm2085.docx" "https://ndownloader.figshare.com/files/57358481"
文件清单
iafd_a_2539896_sm2087.docx（36.45 KB）iafd_a_2539896_sm2086.docx（45.31 KB）iafd_a_2539896_sm2085.docx（39.76 KB）
文件总体积 121.53 KB（源站 API 实测）。
数据说明
Background: Patients with motor neuron disease (MND) often do not experience the full survival and quality of life benefits of noninvasive ventilation (NIV). Successful delivery of NIV is challenging to multiple healthcare professionals involved in the respiratory care patient journey and considering their perspectives is crucial in order to understand how to deliver optimal care. Objective: To identify the factors that influence NIV delivery in MND from a healthcare professional perspective and understand how obstacles can be overcome to optimize care. Methods: Qualitative focus group discussions with healthcare professionals delivering respiratory care and support to MND patients in the UK and charity representatives. Results: Thirty healthcare professionals and three charity representatives participated in five focus groups. A range of factors that influence the delivery of NIV across the entire respiratory care pathway were identified. These were grouped under four main themes: multidisciplinary working; NIV service structure; professional further education and training; and good use of NIV and effective ventilation. Conclusions: There is a need for specific resources to support service delivery; frequent, funded, and structured training to support healthcare professionals to deliver good care; as well as ways to encourage optimal staff practice so patients get the best care.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.29967104.v1（source: https://tandf.figshare.com/articles/dataset/Perceptions_of_healthcare_professionals_on_optimal_delivery_of_noninvasive_ventilation_care_to_people_living_with_motor_neuron_disease/29967104）。
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