访谈转录数据集
包含22名发育障碍患者及护理人员的访谈转录文本，研究医疗环境中残疾披露的舒适度与偏好，用于定性主题分析。
基本信息
资源简介
访谈转录数据集
【数据集背景】
本数据集源站标题为《Interview Transcripts.》。源站首次发布：2025-08-07。
【数据内容】
源站原始描述：Background People with disabilities experience significant healthcare disparities, including missed opportunities for preventive, inaccessible services, and inadequate communication with providers. These challenges often lead to unmet healthcare needs and poor health outcomes. Disability disclosure is one strategy that may aid in closing this healthcare equity gap, though limited research sheds light on patient and caregiver feelings towards and preferences for disclosure. Objective This study a…
【数据结构与技术规格】
文件数 1 个，合计 865.32 KB。pone.0329328.s001.zip：application/zip，865.32 KB。数据集 DOI：10.1371/journal.pone.0329328.s001。
【主题与分类】
源站学科分类：Medicine、Neuroscience、Biotechnology、Developmental Biology、Marine Biology、Cancer。主题标签：two themes illuminated、two themes centered、salient stakeholder groups、reduced stigma ).、poor health outcomes、including missed opportunities、final theme focused、challenges often lead、caregiver feelings towards、avoid perceived pitfalls。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/Interview_Transcripts_/29853937
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Falcon, Ashley; Porter, Andrew; Wallace, Brady; Tatavitto, Jenna; Aaronson, Gillian; Wiles, Arnina; et al. (2025). Interview Transcripts.. PLOS ONE. Dataset
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Interview Transcripts.
- DOI：10.1371/journal.pone.0329328.s001
- 发布日期：2025-08-07
- 文件数：1 个
- 文件总体积：865.32 KB
- 源站页面：https://plos.figshare.com/articles/dataset/Interview_Transcripts_/29853937
命令行下载
curl -L -o "pone.0329328.s001.zip" "https://ndownloader.figshare.com/files/57013237"
文件清单
pone.0329328.s001.zip（865.32 KB）
文件总体积 865.32 KB（源站 API 实测）。
数据说明
Background
People with disabilities experience significant healthcare disparities, including missed opportunities for preventive, inaccessible services, and inadequate communication with providers. These challenges often lead to unmet healthcare needs and poor health outcomes. Disability disclosure is one strategy that may aid in closing this healthcare equity gap, though limited research sheds light on patient and caregiver feelings towards and preferences for disclosure.
Objective
This study assessed comfort with and preferences for disability disclosure within healthcare settings among individuals with developmental disabilities and caregivers of individuals with developmental disabilities.
Methods
An exploratory qualitative research design was employed, utilizing semi-structured interviews with 22 participants (10 patients and 12 caregivers) in South Florida. Data were transcribed and analyzed through thematic analysis to identify key themes related to disability disclosure in healthcare settings.
Results
Five main themes emerged. Two themes centered on the downside of disclosure (harm avoidance and disclosure utility), while two themes illuminated the upside of disclosure (disclosure necessity and reduced stigma). The final theme focused on disclosure preferences.
Conclusions
Comfort with disability disclosure among patients and caregivers was largely motivated by a desire to avoid perceived pitfalls and secure quality healthcare. Findings confirm the persistence of inadequate healthcare delivered to patients with disabilities, and the beneficial role disability disclosure can play in addressing current deficiencies. With support of healthcare system leadership and other salient stakeholder groups, further research can inform development, implementation, and evaluation of disclosure systems that facilitate equitable care delivery and improve health outcomes among patients with developmental disabilities.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0329328.s001（source: https://plos.figshare.com/articles/dataset/Interview_Transcripts_/29853937）。
需要用于商业化训练或医疗器械注册（NMPA/FDA）？
公开数据往往缺乏完整的病理回证与专家标注。千方医数集依托陕川双基地与超十家三甲医院直连，提供完全合规、去标识化、支持注册级质控的专病数据集交易服务。
