医护人员如何支持肌萎缩侧索硬化症患者的咳嗽和分泌物管理：一项英国全国调查

数据集获取（Figshare）

• 源站标题：How healthcare professionals support cough and secretion management in amyotrophic lateral sclerosis (ALS): a UK national survey
• DOI：10.6084/m9.figshare.29412287.v1
• 发布日期：2025-06-26
• 文件数：7 个
• 文件总体积：1.08 MB
• 源站页面：https://tandf.figshare.com/articles/dataset/How_healthcare_professionals_support_cough_and_secretion_management_in_amyotrophic_lateral_sclerosis_ALS_a_UK_national_survey/29412287

命令行下载

curl -L -o "iafd_a_2522401_sm9046.jpg" "https://ndownloader.figshare.com/files/55664888"
curl -L -o "iafd_a_2522401_sm9045.docx" "https://ndownloader.figshare.com/files/55664891"
curl -L -o "iafd_a_2522401_sm9044.jpg" "https://ndownloader.figshare.com/files/55664894"
curl -L -o "iafd_a_2522401_sm9043.docx" "https://ndownloader.figshare.com/files/55664897"
curl -L -o "iafd_a_2522401_sm9042.docx" "https://ndownloader.figshare.com/files/55664900"
curl -L -o "iafd_a_2522401_sm9041.docx" "https://ndownloader.figshare.com/files/55664903"
curl -L -o "iafd_a_2522401_sm9040.docx" "https://ndownloader.figshare.com/files/55664906"

文件清单

• iafd_a_2522401_sm9046.jpg（496.09 KB）
• iafd_a_2522401_sm9045.docx（17.11 KB）
• iafd_a_2522401_sm9044.jpg（492.56 KB）
• iafd_a_2522401_sm9043.docx（18.05 KB）
• iafd_a_2522401_sm9042.docx（19.69 KB）
• iafd_a_2522401_sm9041.docx（16.57 KB）
• iafd_a_2522401_sm9040.docx（15.90 KB）

文件总体积 1.08 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

To understand the practices of healthcare professionals supporting people with Amyotrophic Lateral Sclerosis (ALS) to manage cough and secretion issues. This includes utilization of and confidence in assessment and treatment techniques and barriers and enablers of care.
An online cross-sectional survey was distributed to UK healthcare professionals involved in cough and/or secretion management care in people with ALS.
A total of 113 responses were analyzed, over half were from physiotherapists (52%). The majority (71%) of respondents reported a role managing saliva and secretions. Just under two thirds (60%) routinely assessed cough and almost all (89%) routinely assessed secretions. Healthcare professionals reported reduced confidence assessing secretions compared with cough and very few (5%) used validated secretion outcome measures. Participants reported lower confidence implementing all treatment strategies than recommending them. Multiple barriers to care were identified, including access to specialist care and equipment, education and skills training and a lack of evidence-based care guidelines.
Cough and secretion management is complex and involves numerous professional groups. There is a need for clinical and educational interventions that address knowledge and skill gaps in managing cough and secretion issues, which will help increase healthcare professionals’ confidence in assessing and treating these complex problems.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.29412287.v1（source: https://tandf.figshare.com/articles/dataset/How_healthcare_professionals_support_cough_and_secretion_management_in_amyotrophic_lateral_sclerosis_ALS_a_UK_national_survey/29412287）。