神经系统疾病数字健康技术开发中的患者与公众参与和投入快速综述数据集
该数据集包含一项关于神经系统疾病数字健康技术开发中患者与公众参与（PPIE）的快速文献综述，涵盖28篇纳入研究的元数据及分析结果。
基本信息
资源简介
神经系统疾病数字健康技术开发中的患者与公众参与和投入快速综述数据集
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 2 个文件、合计 68.47 KB，主题涵盖 Digital health、nervous systems diseases、neurocognitive disorders、patient participation、patient involvement，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions》。配套论文《How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions》发表于 Expert Review of Pharmacoeconomics & Outcomes Research（2024），DOI：10.1080/14737167.2024.2410245。项目资助方：This research was funded by the NIHR Newcastle Biomedical Research Centre awarded to the Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle University and Cumbria, Northumberland, Tyne and Wear Foundation Trust. RMA is funded by the National Institute for Health and Care Research (NIHR) (NIHR203309). This research is also funded by The Michael J. Fox Foundation for Parkinson’s Research, grant ID: 100000864-MJFF-022736.。源站首次发布：2024-10-08。
【数据内容】
源站原始描述：Patient and Public Involvement and Engagement (PPIE) involves working ‘with’ or ‘by’ patients and the public, rather than ‘to,’ ‘about,’ or ‘for’ them, and is integral to neurological and digital health research. This rapid review examined PPIE integration in the development and implementation of digital health technologies for neurological conditions. Key terms were input into six databases. Included articles were qualitative studies or PPIE activities involving patient perspectives in shaping…
【数据结构与技术规格】
文件数 2 个，合计 68.47 KB。ierp_a_2410245_sm1497.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，36.36 KB。ierp_a_2410245_sm1496.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，32.12 KB。数据集 DOI：10.6084/m9.figshare.27186115.v1。
【主题与分类】
源站学科分类：Medicine、Science Policy、Developmental Biology、Cancer、Mental Health。主题标签：Digital health、nervous systems diseases、neurocognitive disorders、patient participation、patient involvement、qualitative research、review。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/How_can_patients_shape_digital_medicine_A_rapid_review_of_patient_and_public_involvement_and_engagement_in_the_development_of_digital_health_technologies_for_neurological_conditions/27186115
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions. Taylor & Francis. Hanrahan, Megan; Wilson, Cameron; Keogh, Alison; Barker, Sandra; Rochester, Lynn; Brittain, Katie;…
【使用注意】
· 源站最后修改于 2025-12-10，引用时请注意版本时效。
下载信息
注册下载
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无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
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使用方式
数据集获取（Figshare）
- 源站标题：How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions
- DOI：10.6084/m9.figshare.27186115.v1
- 发布日期：2024-10-08
- 文件数：2 个
- 文件总体积：68.47 KB
- 源站页面：https://tandf.figshare.com/articles/dataset/How_can_patients_shape_digital_medicine_A_rapid_review_of_patient_and_public_involvement_and_engagement_in_the_development_of_digital_health_technologies_for_neurological_conditions/27186115
命令行下载
curl -L -o "ierp_a_2410245_sm1497.docx" "https://ndownloader.figshare.com/files/49656789"
curl -L -o "ierp_a_2410245_sm1496.docx" "https://ndownloader.figshare.com/files/49656792"
文件清单
ierp_a_2410245_sm1497.docx（36.36 KB）ierp_a_2410245_sm1496.docx（32.12 KB）
文件总体积 68.47 KB（源站 API 实测）。
数据说明
Patient and Public Involvement and Engagement (PPIE) involves working ‘with’ or ‘by’ patients and the public, rather than ‘to,’ ‘about,’ or ‘for’ them, and is integral to neurological and digital health research. This rapid review examined PPIE integration in the development and implementation of digital health technologies for neurological conditions.
Key terms were input into six databases. Included articles were qualitative studies or PPIE activities involving patient perspectives in shaping digital health technologies for neurological conditions. Bias was evaluated using the NICE qualitative checklist, with reporting following PRISMA guidelines.
2,140 articles were identified, with 28 included. Of these, 25 were qualitative studies, and only three were focused PPIE activities. Patient involvement was mostly limited to one-off consultations during development.There was little evidence of PPIE during implementation, and minimal reporting on its impact.
PPIE has been inconsistently reported in this research area, highlighting the need for more guidance and best-practice examples This review used a UK-based definition of PPIE, which may have excluded relevant activities from other countries. Future reviews should broaden terminology to capture PPIE integration globally.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.27186115.v1（source: https://tandf.figshare.com/articles/dataset/How_can_patients_shape_digital_medicine_A_rapid_review_of_patient_and_public_involvement_and_engagement_in_the_development_of_digital_health_technologies_for_neurological_conditions/27186115）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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