自闭症儿童和青少年及其照顾者在医疗中遭遇种族主义和种族差异的体验：一项系统综述
探讨自闭症儿童和青少年及其照顾者在医疗中遭遇种族主义和种族差异的系统综述数据集，包含对37项研究的主题分析。
基本信息
资源简介
自闭症儿童和青少年及其照顾者在医疗中遭遇种族主义和种族差异的体验：一项系统综述
【一句话概览】
本数据集是 figshare 公开的文本数据集，收录 3 个文件、合计 135.37 KB，主题涵盖 Access to care、autism、barriers to care、disability、health care discrimination，可用于医学自然语言处理（实体识别、信息抽取等），CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Experiences of racism and racial disparities in health care among children and youth with autism and their caregivers: a systematic review》。配套论文《Experiences of racism and racial disparities in health care among children and youth with autism and their caregivers: a systematic review》发表于 Disability and Rehabilitation（2024），DOI：10.1080/09638288.2024.2364823。项目资助方：Funding for this study was provided, in part by a Social Science and Humanities Research Council grant with matched funding from the Kimel Family Fund through Holland Bloorview Kids Rehabilitation Hospital awarded to S. Lindsay.。源站首次发布：2024-06-12。
【数据内容】
源站原始描述：Although the health benefits of early diagnosis and therapeutic approaches for children and youth with autism spectrum disorder (ASD), racial disparities persist. This systematic review explored the experiences of racism and racial disparities in health care among children and youth with ASD and their caregivers. We conducted a systematic review, drawing on six international databases. Two reviewers screened titles, abstracts, and full texts. Thirty-seven studies met our inclusion criteria and w…
中文译文（机器翻译，仅供快速理解，请以原文为准）：尽管针对患有自闭症谱系障碍（ASD）的儿童和青少年，早期诊断和治疗方法的健康益处显而易见，但种族差异依然存在。本系统综述探讨了患有ASD的儿童和青少年及其照护者在医疗保健中经历的种族主义和种族差异。 我们进行了一项系统综述，利用六个国际数据库。两名评审员筛选了标题、摘要和全文。三十七项研究符合我们的纳入标准，我们采用叙事综合法来提炼主题。 确定了四个主题：（1）种族主义和种族差异的经历与方面（即语言和文化障碍、低质量的医疗互动、刻板印象和歧视、家庭和社区污名化，以及间接障碍）；（2）医疗保健中的种族差异（即筛查和转诊、诊断、医疗保健服务，以及护理协调和药物治疗）；（3）获取医疗保健服务的促进因素；（4）来自照护者的建议。 本综述强调了自闭症儿童经历的广泛种族差异。需要更多的研究来探索青少年对种族主义的看法，以及探索潜在的干预措施，以解决种族差异并改善ASD青少年的健康公平性。 种族少数化的自闭症青少年在获取医疗保健方面面临许多障碍，迫切需要在我们的医疗保健系统中解决系统性种族主义问题。 医疗保健领导者和决策者应倡导政策和系统变革，以增强所有残疾青少年，特别是属于少数化群体的青少年，获得医疗服务的公平性。 医疗保健提供者应考虑参与相关培训，为种族多样化的自闭症客户提供文化上安全和适当的服务。 医疗保健提供者和决策者应共同努力，消除种族少数化的自闭症青少年在获取医疗保健方面的障碍。 种族少数化的自闭症青少年在获取医疗保健方面面临许多障碍，迫切需要在我们的医疗保健系统中解决系统性种族主义问题。 医疗保健领导者和决策者应倡导政策和系统变革，以增强所有残疾青少年，特别是属于少数化群体的青少年，获得医疗服务的公平性。 医疗保健提供者应考虑参与相关培训，为种族多样化的自闭症客户提供文化上安全和适当的服务。 医疗保健提供者和决策者应共同努力，消除种族少数化的自闭症青少年在获取医疗保健方面…
【数据结构与技术规格】
文件数 3 个，合计 135.37 KB。4 Supplemental 1_Search strategy_ASD and racism.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，16.42 KB。5 Supplemental file 2 Quality Appraisal Final_Nov 15.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，87.66 KB。PRISMA_2020_checklist_May 2024.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，31.29 KB。数据集 DOI：10.6084/m9.figshare.26021831.v1。
【主题与分类】
源站学科分类：Medicine、Biotechnology、Science Policy、Mental Health、Infectious Diseases。主题标签：Access to care、autism、barriers to care、disability、health care discrimination、racism。
【适用方向】
文本类数据可用于医学自然语言处理，如命名实体识别、信息抽取与文本分类。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/Experiences_of_racism_and_racial_disparities_in_health_care_among_children_and_youth_with_autism_and_their_caregivers_a_systematic_review/26021831
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Experiences of racism and racial disparities in health care among children and youth with autism and their caregivers: a systematic review. Taylor & Francis. Lindsay, Sally; Li, Yiyan; Joneja, Simran; Hsu, Shaelynn
【使用注意】
· 源站最后修改于 2025-02-26，引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：Experiences of racism and racial disparities in health care among children and youth with autism and their caregivers: a systematic review
- DOI：10.6084/m9.figshare.26021831.v1
- 发布日期：2024-06-12
- 文件数：3 个
- 文件总体积：135.37 KB
- 源站页面：https://tandf.figshare.com/articles/dataset/Experiences_of_racism_and_racial_disparities_in_health_care_among_children_and_youth_with_autism_and_their_caregivers_a_systematic_review/26021831
命令行下载
curl -L -o "4 Supplemental 1_Search strategy_ASD and racism.docx" "https://ndownloader.figshare.com/files/47007698"
curl -L -o "5 Supplemental file 2 Quality Appraisal Final_Nov 15.docx" "https://ndownloader.figshare.com/files/47007701"
curl -L -o "PRISMA_2020_checklist_May 2024.docx" "https://ndownloader.figshare.com/files/47007704"
文件清单
4 Supplemental 1_Search strategy_ASD and racism.docx（16.42 KB）5 Supplemental file 2 Quality Appraisal Final_Nov 15.docx（87.66 KB）PRISMA_2020_checklist_May 2024.docx（31.29 KB）
文件总体积 135.37 KB（源站 API 实测）。
数据说明
Although the health benefits of early diagnosis and therapeutic approaches for children and youth with autism spectrum disorder (ASD), racial disparities persist. This systematic review explored the experiences of racism and racial disparities in health care among children and youth with ASD and their caregivers.
We conducted a systematic review, drawing on six international databases. Two reviewers screened titles, abstracts, and full texts. Thirty-seven studies met our inclusion criteria and we applied a narrative synthesis to develop themes.
Four themes were identified: (1) experiences and aspects of racism and racial disparities (i.e., language and cultural barriers, poor quality health care interactions, stereotypes and discrimination, family and community stigma, and indirect barriers); (2) racial disparities in health care (i.e., screening and referral, diagnosis, health care services, and care coordination and medication); (3) facilitators to accessing health care services; and (4) recommendations from caregivers.
This review highlights the extensive racial disparities experienced by children with autism. More research is needed to explore youth’s perspectives on racism in addition to exploring potential interventions to address racial disparities and improve health equity for youth with ASD.
Racial minoritized youth with autism experience many barriers in accessing health care and there is an urgent need to address the systemic racism within our health care systems.
Health care leaders and decision-makers should advocate for policy and systems change to enhance equitable access to health services for all youth with disabilities, especially those who belong to minoritized groups.
Health care providers should consider engaging in relevant training to provide culturally safe and appropriate services for racially diverse clients with autism.
Health care providers and decision-makers should work together to remove barriers to accessing health care for racial minoritized youth with autism.
Racial minoritized youth with autism experience many barriers in accessing health care and there is an urgent need to address the systemic racism within our health c
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.26021831.v1（source: https://tandf.figshare.com/articles/dataset/Experiences_of_racism_and_racial_disparities_in_health_care_among_children_and_youth_with_autism_and_their_caregivers_a_systematic_review/26021831）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
⚡️ 需要数据支持或标注服务？立即联系我们获取专业方案。
