肌萎缩侧索硬化特异性生活质量量表简短形式土耳其版文化适应与心理测量评估数据集

数据集获取（Figshare）

• 源站标题：Cross-cultural adaptation and psychometric evaluation of a Turkish version of the Amyotrophic Lateral Sclerosis-Specific Quality of Life-Short Form
• DOI：10.6084/m9.figshare.29148703.v1
• 发布日期：2025-05-26
• 文件数：2 个
• 文件总体积：45.26 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Cross-cultural_adaptation_and_psychometric_evaluation_of_a_Turkish_version_of_the_Amyotrophic_Lateral_Sclerosis-Specific_Quality_of_Life-Short_Form/29148703

命令行下载

curl -L -o "iafd_a_2507177_sm8844.docx" "https://ndownloader.figshare.com/files/54827134"
curl -L -o "iafd_a_2507177_sm8843.docx" "https://ndownloader.figshare.com/files/54827137"

文件清单

• iafd_a_2507177_sm8844.docx（19.46 KB）
• iafd_a_2507177_sm8843.docx（25.80 KB）

文件总体积 45.26 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Objective: This study aimed to evaluate the validity and reliability of the Turkish version of the Amyotrophic Lateral Sclerosis Specific Quality of Life Instrument Short Form (ALSSQOL-SF), a quality-of-life scale originally developed by Simons et al., for Turkish Amyotrophic Lateral Sclerosis (ALS) patients. Methods: Using a rigorous six-step translation process, the scale was adapted without altering any items to maintain linguistic and cultural equivalence. The study included 100 patients diagnosed with ALS, aged 18 years and older, and native Turkish speakers. Results: Psychometric evaluations revealed strong content validity (CVI: 100%) and high internal consistency (Cronbach’s alpha: 0.86 for the overall scale, 0.74–0.95 for subscales). Item-total correlation coefficients, except for three items, exceeded 0.20, and removing these items did not improve the scale’s reliability, preserving the scale’s integrity. Construct validity was supported by significant correlations with the Short Form 12 Health Survey Questionnaire (SF-12) and ALS Functional Rating Scale Revised (ALSFRS-R), confirming the scale’s ability to assess physical and mental health in ALS patients. Exploratory factor analysis showed a 6-factor structure consistent with the original structure. Conclusion: Turkish version of ALSSQOL-SF (ALSSQOL-SF-Tr) is a reliable and valid instrument for assessing the quality of life in Turkish ALS patients. Its application in clinical and research settings can help evaluate patient needs and improve disease management.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.29148703.v1（source: https://tandf.figshare.com/articles/dataset/Cross-cultural_adaptation_and_psychometric_evaluation_of_a_Turkish_version_of_the_Amyotrophic_Lateral_Sclerosis-Specific_Quality_of_Life-Short_Form/29148703）。