拉丁美洲和加勒比地区重症肌无力流行病学、资源与诊疗可及性表1

包含拉丁美洲12国重症肌无力诊疗资源、成本与可及性的表格数据。

NIAID Data Ecosystem
浏览 9
表格accessibilityhealth care costshealth economicsLatin Americamyasthenia gravis
Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx

基本信息

模态
表格
大小
0.000688233 GB
许可
CC BY 4.0
创建/更新时间
2026-10-19
版本
v1

资源简介

拉丁美洲和加勒比地区重症肌无力流行病学、资源与诊疗可及性表1

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集,收录 1 个文件、合计 688.23 KB,主题涵盖 accessibility、health care costs、health economics、Latin America、myasthenia gravis,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。

【数据集背景】

本数据集源站标题为《Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx》。配套论文《No time to wait: resilience as a cornerstone for primary health care across Latin America and the Caribbean, a World Bank-PAHO Lancet Regional Health Americas Commission》发表于 The Lancet Regional Health - Americas(2025),DOI:10.1016/j.lana.2025.101240。源站首次发布:2026-04-08。

【数据内容】

源站原始描述:Latin-American and Caribbean (LAC) countries face persistent challenges in achieving universal health coverage, with out-of-pocket healthcare expenditures posing a significant barrier. Access to care for rare diseases, such as myasthenia gravis (MG), is significantly impacted. We conducted an exploratory descriptive study between LAC countries, and we assessed the availability of diagnostic and therapeutic resources for MG across 12 LAC countries, along with associated costs and access barriers.…

中文译文(机器翻译,仅供快速理解,请以原文为准):拉丁美洲和加勒比(LAC)国家在实现全民健康覆盖方面面临持续挑战,自付医疗支出构成了重大障碍。罕见病(如重症肌无力(MG))的医疗服务可及性受到显著影响。我们在LAC国家之间开展了一项探索性描述性研究,评估了12个LAC国家MG诊断和治疗资源的可获得性,以及相关费用和可及性障碍。我们发现,公共卫生系统在诊断检测和疗法的可获得性与覆盖方面存在明显不平等。高昂的自付费用(可达最低工资的数倍)以及神经科医生短缺,使许多MG患者无法获得适当的诊断和治疗。在拉丁美洲,大多数MG患者无法获得MG的新型治疗。

【数据结构与技术规格】

文件数 1 个,合计 688.23 KB。Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,688.23 KB。数据集 DOI:10.3389/fpubh.2026.1791605.s001。

【主题与分类】

源站学科分类:Public Health and Health Services not elsewhere classified。主题标签:accessibility、health care costs、health economics、Latin America、myasthenia gravis。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://frontiersin.figshare.com/articles/dataset/Table_1_Myasthenia_gravis_in_Latin_America_and_the_Caribbean_epidemiology_resources_and_accessibility_to_diagnosis_and_treatment_docx/31957962

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Salutto, Valeria L.; Navarro, Cristian E.; Pincheira, Alejandra Urra; Camaño, David R. Dondis; Guerrero, Karina; dos Santos, André C. J.; et al. (2026). Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx. Frontiers…

官方服务

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陕川双基地 × 超十家三甲医院直连

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下载信息

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使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx" "https://ndownloader.figshare.com/files/63541560"

文件清单

  • Table 1_Myasthenia gravis in Latin America and the Caribbean: epidemiology, resources, and accessibility to diagnosis and treatment.docx(688.23 KB)

文件总体积 688.23 KB(源站 API 实测)。

数据说明

Latin-American and Caribbean (LAC) countries face persistent challenges in achieving universal health coverage, with out-of-pocket healthcare expenditures posing a significant barrier. Access to care for rare diseases, such as myasthenia gravis (MG), is significantly impacted. We conducted an exploratory descriptive study between LAC countries, and we assessed the availability of diagnostic and therapeutic resources for MG across 12 LAC countries, along with associated costs and access barriers. We found marked inequalities regarding the availability and coverage of diagnostic tests and therapies by public healthcare systems. The elevated out-of-pocket costs, up to several times the minimum wage, and shortage of neurologists, makes appropriate diagnosis and treatments inaccessible for many patients living with MG. Novel treatments for MG are unavailable for most people with MG in Latin America.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fpubh.2026.1791605.s001(source: https://frontiersin.figshare.com/articles/dataset/Table_1_Myasthenia_gravis_in_Latin_America_and_the_Caribbean_epidemiology_resources_and_accessibility_to_diagnosis_and_treatment_docx/31957962)。

数据缺失?

依托陕西、四川两大基地,我们与超过十家三甲医院建立直接合作关系,覆盖合规授权、采集治理、专业标注、数据交付的全流程,为AI医疗团队提供即拿即用的高质量临床数据。

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