美国成年人全身型重症肌无力医疗资源利用与成本负担评估数据表1
美国成年人全身型重症肌无力医疗资源利用与成本负担评估的表格数据,包含2014-2019年诊断索赔及HCRU/成本分析。

基本信息
资源简介
美国成年人全身型重症肌无力医疗资源利用与成本负担评估数据表1
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集,收录 1 个文件、合计 759.15 KB,主题涵盖 myasthenia gravis (MG)、myasthenic crisis、healthcare resource utilization (HCRU)、cost analysis、disease burden,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx》。配套论文《Clinical burden and healthcare resource utilization associated with myasthenia gravis: Assessments from a Japanese claims database》发表于 Clinical and Experimental Neuroimmunology(2019),DOI:10.1111/cen3.12495。源站首次发布:2022-01-18。
【数据内容】
源站原始描述:IntroductionLimited evidence exists for healthcare resource utilization (HCRU) and costs associated with generalized myasthenia gravis (gMG), a rare autoimmune disorder, for adults in the United States. MethodsAdults with ≥1 diagnostic claim for MG between 2014 and 2019 were identified using Symphony Health''s Integrated Dataverse®. Using a novel algorithm, HCRU and costs over 12 months following index dates were evaluated for patients with gMG including those with exacerbation events. For patien…
【数据结构与技术规格】
文件数 1 个,合计 759.15 KB。Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,759.15 KB。数据集 DOI:10.3389/fneur.2021.809999.s001。
【主题与分类】
源站学科分类:Neurology and Neuromuscular Diseases、Neurogenetics。主题标签:myasthenia gravis (MG)、myasthenic crisis、healthcare resource utilization (HCRU)、cost analysis、disease burden。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面:https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_Real-World_Healthcare_Resource_Utilization_and_Cost_Burden_Assessment_for_Adults_With_Generalized_Myasthenia_Gravis_in_the_United_States_docx/18616376
使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。
规范引用:Phillips, Glenn; Abreu, Catarina; Goyal, Amit; Li, Yuebing; Whangbo, Albert; Gelinas, Deborah; et al. (2022). Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx. Frontiers. Dataset
【使用注意】
· 源站最后修改于 2023-06-16,引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务(收技术服务费,非数据销售)
暂未开放当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取(Figshare)
- 源站标题:Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx
- DOI:10.3389/fneur.2021.809999.s001
- 发布日期:2022-01-18
- 文件数:1 个
- 文件总体积:759.15 KB
- 源站页面:https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_Real-World_Healthcare_Resource_Utilization_and_Cost_Burden_Assessment_for_Adults_With_Generalized_Myasthenia_Gravis_in_the_United_States_docx/18616376
命令行下载
curl -L -o "Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx" "https://ndownloader.figshare.com/files/33393995"
文件清单
Data_Sheet_1_Real-World Healthcare Resource Utilization and Cost Burden Assessment for Adults With Generalized Myasthenia Gravis in the United States.docx(759.15 KB)
文件总体积 759.15 KB(源站 API 实测)。
数据加载示例(图像类)
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
IntroductionLimited evidence exists for healthcare resource utilization (HCRU) and costs associated with generalized myasthenia gravis (gMG), a rare autoimmune disorder, for adults in the United States.
MethodsAdults with ≥1 diagnostic claim for MG between 2014 and 2019 were identified using Symphony Health’'s Integrated Dataverse®. Using a novel algorithm, HCRU and costs over 12 months following index dates were evaluated for patients with gMG including those with exacerbation events. For patients who experienced crisis events, HCRU and costs were analyzed during the 36 months preceding, during, and 12 months following the events.
ResultsMean HCRU and costs were higher for newly diagnosed patients compared with previously diagnosed patients (hospitalizations: 0.46 vs. 0.34; all-cause costs: $26,419.20 vs. $24,941.47; direct costs for gMG treatments: $9,890.37 vs. $9,186.47) and further increased for patients with exacerbation events (hospitalizations: 0.72; all-cause costs: $43,734.15; direct costs for gMG treatments: $21,550.02). For patients who experienced crisis events, HCRU and costs markedly increased during the 12 months immediately before the crisis event (hospitalizations: 1.35; all-cause costs: $49,236.68) compared with the 2 preceding years and increased further during the 12 months following the crisis index date (hospitalizations: 2.78; all-cause costs: $173,956.99). Cost increases were, in large part, attributed to treatments received.
DiscussionNew diagnosis, exacerbation, and crisis events were drivers of HCRU and cost for patients with gMG. Particularly, high costs of gMG-specific medications associated with intervention for exacerbation and crisis events contributed to increased all-cause costs.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.3389/fneur.2021.809999.s001(source: https://frontiersin.figshare.com/articles/dataset/Data_Sheet_1_Real-World_Healthcare_Resource_Utilization_and_Cost_Burden_Assessment_for_Adults_With_Generalized_Myasthenia_Gravis_in_the_United_States_docx/18616376)。
数据缺失?
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