建立脑瘫儿童和青少年慢性疼痛评估共识：一项德尔菲研究

数据集获取（Figshare）

• 源站标题：Establishing consensus for the assessment of chronic pain in children and young people with cerebral palsy: a Delphi study
• DOI：10.6084/m9.figshare.16755107.v1
• 发布日期：2021-10-06
• 文件数：2 个
• 文件总体积：171.03 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Establishing_consensus_for_the_assessment_of_chronic_pain_in_children_and_young_people_with_cerebral_palsy_a_Delphi_study/16755107

命令行下载

curl -L -o "idre_a_1985632_sm1911.pdf" "https://ndownloader.figshare.com/files/31006577"
curl -L -o "idre_a_1985632_sm1910.pdf" "https://ndownloader.figshare.com/files/31006580"

文件清单

• idre_a_1985632_sm1911.pdf（47.13 KB）
• idre_a_1985632_sm1910.pdf（123.90 KB）

文件总体积 171.03 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Inconsistent and inadequate pain assessment practices in cerebral palsy (CP) have resulted from a lack of standardisation of pain assessment, limited use of appropriate tools and failure to integrate disability and biopsychosocial models. To assist with improving consistency, this study aimed to establish consensus from key stakeholders regarding domains considered essential for measuring chronic pain in children and young people with CP.
A modified electronic Delphi study was conducted on 83 stakeholders, including clinicians, researchers, people with CP and parents of children with CP. Participants rated 18 domains sourced from existing literature as either “core”, “recommended”, “exploratory” or “not required”.
After two rounds of surveys, 12 domains were considered core: pain location, pain frequency, pain intensity, changeable factors, impact on emotional wellbeing, impact on participation, pain communication, influence on quality of life, physical impacts, sleep, pain duration and pain expression.
These domains reflect the complexity of pain in a heterogeneous population where medical comorbidities are common and communication and intellectual limitations impact significantly on the ability of many to self-report. The domains will be utilised to build a framework of pain assessment specific to children and young people with CP guided by the biopsychosocial model.Implications for rehabilitation
Chronic pain is under-identified and poorly assessed in the cerebral palsy (CP) population.
The perspectives of clinicians, researchers and consumers are vital for developing a framework for chronic pain assessment in CP.
Consensus of key stakeholders found 12 domains considered essential to incorporate into a chronic pain assessment model in CP.

Chronic pain is under-identified and poorly assessed in the cerebral palsy (CP) population.
The perspectives of clinicians, researchers and consumers are vital for developing a framework for chronic pain assessment in CP.
Consensus of key stakeholders found 12 domains considered essential to incorporate into a chronic pain assessment model in CP.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.16755107.v1（source: https://tandf.figshare.com/articles/dataset/Establishing_consensus_for_the_assessment_of_chronic_pain_in_children_and_young_people_with_cerebral_palsy_a_Delphi_study/16755107）。