脑瘫儿童选择性脊神经后根切断术（SDR）决策辅助工具开发数据集

数据集获取（Figshare）

• 源站标题：Development of a decision aid for Australian carers of children with cerebral palsy and their community clinicians, about selective dorsal rhizotomy surgery
• DOI：10.6084/m9.figshare.28397118.v1
• 发布日期：2025-02-12
• 文件数：3 个
• 文件总体积：4.34 MB
• 源站页面：https://tandf.figshare.com/articles/dataset/Development_of_a_decision_aid_for_Australian_carers_of_children_with_cerebral_palsy_and_their_community_clinicians_about_selective_dorsal_rhizotomy_surgery/28397118

命令行下载

curl -L -o "idre_a_2463637_sm2700.pdf" "https://ndownloader.figshare.com/files/52294275"
curl -L -o "idre_a_2463637_sm2699.pdf" "https://ndownloader.figshare.com/files/52294278"
curl -L -o "idre_a_2463637_sm2698.pdf" "https://ndownloader.figshare.com/files/52294281"

文件清单

• idre_a_2463637_sm2700.pdf（4.13 MB）
• idre_a_2463637_sm2699.pdf（88.98 KB）
• idre_a_2463637_sm2698.pdf（125.53 KB）

文件总体积 4.34 MB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Develop and user-test a patient decision aid about selective dorsal rhizotomy (SDR) surgery for carers of children with cerebral palsy (CP) and clinicians treating children with CP.
This study utilised a mixed-methods design. Stage One developed the prototype. Stage Two recruited carers and clinicians to focus groups/semi-structured interviews to review the prototype. Stage Three was an iterative cycle of redrafts based on feedback from Stage Two and input from the SDR Advisory and Consumer Groups. Stage Four assessed acceptability of the SDR Decision Aid via questionnaire.
A prototype SDR decision aid was developed and reviewed by 13 clinicians and 8 carers. Five themes were identified: (1) positive and (2) constructive feedback on the presentation; and additional information considered important for future end-users regarding (3) rehabilitation, (4) lived experience, and (5) selection processes. The final version of the SDR Decision Aid was rated highly acceptable by carers and clinicians, based on length, amount of information provided, and usefulness in clinical settings. Participants indicated they would recommend the decision aid to others seeking information about SDR.
The SDR Decision Aid is an acceptable and valuable tool for helping parents discuss SDR as a treatment option with their clinicians.

Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP).
There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Australia.
This gap was addressed through a co-design process to develop an SDR Decision Aid.
Acceptability testing found that the SDR Decision Aid is an acceptable and valuable tool in initiating discussions to facilitate shared decision-making about SDR as a treatment option for children with CP.

Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP).
There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Au

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.28397118.v1（source: https://tandf.figshare.com/articles/dataset/Development_of_a_decision_aid_for_Australian_carers_of_children_with_cerebral_palsy_and_their_community_clinicians_about_selective_dorsal_rhizotomy_surgery/28397118）。