The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy
评估肯尼亚非行走脑瘫儿童使用纸基技术姿势支持设备对儿童和家庭生活影响的混合方法研究数据。
基本信息
资源简介
The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 1 个文件、合计 2.92 MB，主题涵盖 Cerebral palsy、resource-limited country、paper technology、adaptive seating、standing frames，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
配套论文《The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy》发表于 Disability and Rehabilitation: Assistive Technology（2020），DOI：10.1080/17483107.2020.1830442。项目资助方：Funding for the study came from the Gibbs Trust, Welsh Government and WCVA’s Welsh Africa Community Links Programme, Powys Health Board Research Funding, and a Jiraffe (UK) Donation.。源站首次发布：2020-10-19。
【数据内容】
源站原始描述：Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children’s and families’ lives. A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the…
【数据结构与技术规格】
文件数 1 个，合计 2.92 MB。iidt_a_1830442_sm9591.odt：application/vnd.oasis.opendocument.text，2.92 MB。数据集 DOI：10.6084/m9.figshare.13114424.v1。
【主题与分类】
源站学科分类：Medicine、Sociology、Biological Sciences not elsewhere classified、Science Policy、Virology、Computational Biology。主题标签：Cerebral palsy、resource-limited country、paper technology、adaptive seating、standing frames、assistive devices。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/The_efficacy_of_appropriate_paper-based_technology_for_Kenyan_children_with_cerebral_palsy/13114424
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy. Taylor & Francis. Barton, Catherine; Buckley, John; Samia, Pauline; Williams, Fiona; Taylor, Suzan R.; Lindoewood, Rachel
【使用注意】
· 源站最后修改于 2023-05-30，引用时请注意版本时效。
下载信息
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使用方式
数据集获取（Figshare）
- 源站标题：The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy
- DOI：10.6084/m9.figshare.13114424.v1
- 发布日期：2020-10-19
- 文件数：1 个
- 文件总体积：2.92 MB
- 源站页面：https://tandf.figshare.com/articles/dataset/The_efficacy_of_appropriate_paper-based_technology_for_Kenyan_children_with_cerebral_palsy/13114424
命令行下载
curl -L -o "iidt_a_1830442_sm9591.odt" "https://ndownloader.figshare.com/files/25151426"
文件清单
iidt_a_1830442_sm9591.odt（2.92 MB）
文件总体积 2.92 MB（源站 API 实测）。
数据说明
Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children’s and families’ lives.
A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the children and families included the Family Impact Assistive Technology Scale for Adaptive Seating (FIATS-AS); the Child Engagement in Daily Life (CEDL) questionnaire; and a qualitative assessment from diary/log and semi-structured interviews.
Ten children (median 3 years, range 9 months to 7 years). Baseline to follow-up median (IQR) FIATS-AS were: 22.7 (9.3) and 30.3 (10.2), respectively (p=.002). Similarly mean (SD) CEDL scores for “frequency” changed from 30.5 (13.2) to 42.08 (5.96) (p=.021) and children’s enjoyment scores from 2.23 (0.93) to 2.91 (0.79) (p=.019). CEDL questionnaire for self-care was not discriminatory; seven families scored zero at both baseline and 6 months. Qualitative interviews revealed three key findings; that APT improved functional ability, involvement/interaction in daily-life situations, and a reduced family burden of care.
APT devices used in Kenyan children with non-ambulant CP had a meaningful positive effect on both the children’s and their families’ lives.Implications for rehabilitation
Assistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries.
APT is a low cost and sustainable solution to make seating and standing devices for disabled children in Kenya.
The regular use of a postural support device enhanced the children’s motor skills, ability to function and participate in everyday activities, reduced the burden of care for the families and promoted the children’s social interaction.
The postural support devices were highly valued and utilised by the children and families in this study.
Assistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.13114424.v1（source: https://tandf.figshare.com/articles/dataset/The_efficacy_of_appropriate_paper-based_technology_for_Kenyan_children_with_cerebral_palsy/13114424）。
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