IRIS注册表视网膜母细胞瘤幸存者视力关联数据集
基于IRIS注册表，研究视网膜母细胞瘤幸存者视力与社会人口学因素关联的临床数据集。
基本信息
资源简介
IRIS注册表视网膜母细胞瘤幸存者视力关联数据集
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 3 个文件、合计 45.57 KB，主题涵盖 Childhood cancer survivors、enucleation、racial and ethnic disparities、retinoblastoma、socioeconomic status，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
本数据集源站标题为《The Association of Race, Ethnicity, and Insurance Status with the Visual Acuity of Retinoblastoma Survivors in the IRIS® Registry》。配套论文《The Association of Race, Ethnicity, and Insurance Status with the Visual Acuity of Retinoblastoma Survivors in the IRIS® Registry》发表于 Ophthalmic Epidemiology（2024），DOI：10.1080/09286586.2024.2315075。项目资助方：All authors – Massachusetts Eye and Ear Clinical Data Science Fund, TE – National Institute of Health grant number P30 EY003790, IO – Agency for Healthcare Research and Quality grant number T32HS000063, Boston Children’s Hospital Office of Faculty Development Grant, Knights Templar Eye Foundation Career-Starter Research Grant. IO, DGH – Children’s Hospital Ophthalmology Foundation, Inc, Boston, MA. The sponsor or funding organizations had no role in the design or conduct of this research.。源站首次发布：2024-04-05。
【数据内容】
源站原始描述：To identify sociodemographic factors associated with the visual outcomes of retinoblastoma survivors. Retrospective cohort study using a US-based clinical data registry. All individuals This analysis included 1545 children with a history of retinoblastoma. The median length of follow-up was 4.1 years (IQR, 2.2–5.9 years) and the median age at most recent clinical visit was 12 years (IQR, 8–16 years). Retinoblastoma was unilateral in 54% of cases. Poor vision in at least one eye was identified in…
【数据结构与技术规格】
文件数 3 个，合计 45.57 KB。Appendix.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，13.95 KB。eTable_1.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，15.40 KB。eTable_2.docx：application/vnd.openxmlformats-officedocument.wordprocessingml.document，16.22 KB。数据集 DOI：10.6084/m9.figshare.25552203.v1。
【主题与分类】
源站学科分类：Medicine、Sociology、Immunology、Science Policy。主题标签：Childhood cancer survivors、enucleation、racial and ethnic disparities、retinoblastoma、socioeconomic status、visual acuity。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://tandf.figshare.com/articles/dataset/The_Association_of_Race_Ethnicity_and_Insurance_Status_with_the_Visual_Acuity_of_Retinoblastoma_Survivors_in_the_IRIS_Registry/25552203
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：The Association of Race, Ethnicity, and Insurance Status with the Visual Acuity of Retinoblastoma Survivors in the IRIS® Registry. Taylor & Francis. Oke, Isdin; Gonzalez, Efren; Elze, Tobias; Miller, Joan W.; Lorch, Alice C.; Hunter, David G.; et al
【使用注意】
· 源站最后修改于 2025-02-07，引用时请注意版本时效。
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：The Association of Race, Ethnicity, and Insurance Status with the Visual Acuity of Retinoblastoma Survivors in the IRIS® Registry
- DOI：10.6084/m9.figshare.25552203.v1
- 发布日期：2024-04-05
- 文件数：3 个
- 文件总体积：45.57 KB
- 源站页面：https://tandf.figshare.com/articles/dataset/The_Association_of_Race_Ethnicity_and_Insurance_Status_with_the_Visual_Acuity_of_Retinoblastoma_Survivors_in_the_IRIS_Registry/25552203
命令行下载
curl -L -o "Appendix.docx" "https://ndownloader.figshare.com/files/45476619"
curl -L -o "eTable_1.docx" "https://ndownloader.figshare.com/files/45476622"
curl -L -o "eTable_2.docx" "https://ndownloader.figshare.com/files/45476625"
文件清单
Appendix.docx（13.95 KB）eTable_1.docx（15.40 KB）eTable_2.docx（16.22 KB）
文件总体积 45.57 KB（源站 API 实测）。
数据加载示例（图像类）
from PIL import Image
import glob, os
files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
+ glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)
# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path) # 要求 子目录=类别
目录组织与标注格式以源站说明和下载后实际文件为准。
数据说明
To identify sociodemographic factors associated with the visual outcomes of retinoblastoma survivors.
Retrospective cohort study using a US-based clinical data registry. All individuals This analysis included 1545 children with a history of retinoblastoma. The median length of follow-up was 4.1 years (IQR, 2.2–5.9 years) and the median age at most recent clinical visit was 12 years (IQR, 8–16 years). Retinoblastoma was unilateral in 54% of cases. Poor vision in at least one eye was identified in 78% of all children and poor vision in both eyes in 17% of those with bilateral disease. Poor visual outcomes were associated with unilateral diagnosis (OR, 1.55; 95% CI,1.13–2.12; p = .007), Black race (OR, 2.03; 95% CI, 1.19–3.47; p = .010), Hispanic ethnicity (OR, 1.65; 95% CI, 1.16–2.37; p = .006), and non-private insurance (OR, 1.47; 95% CI, 1.02–2.10; p = .037).
Poor visual outcomes appear to be more common among Black, Hispanic, and publicly insured children with a history of retinoblastoma, raising concerns regarding healthcare inequities. Primary care physicians should ensure that young children receive red reflex testing during routine visits and consider retinoblastoma in the differential diagnosis of abnormal eye exams.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.6084/m9.figshare.25552203.v1（source: https://tandf.figshare.com/articles/dataset/The_Association_of_Race_Ethnicity_and_Insurance_Status_with_the_Visual_Acuity_of_Retinoblastoma_Survivors_in_the_IRIS_Registry/25552203）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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