神经母细胞瘤对家庭治疗成本分析：中国单中心横断面研究

数据集获取（Figshare）

• 源站标题：Analysis of treatment cost for neuroblastoma to the family: a single-center cross-sectional study in China
• DOI：10.6084/m9.figshare.12601270.v2
• 发布日期：2020-08-24
• 文件数：2 个
• 文件总体积：44.12 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Analysis_of_treatment_cost_for_neuroblastoma_to_the_family_A_single-center_cross-sectional_study_in_China/12601270

命令行下载

curl -L -o "ijme_a_1786392_sm4006.docx" "https://ndownloader.figshare.com/files/23613523"
curl -L -o "ijme_a_1786392_sm4007.docx" "https://ndownloader.figshare.com/files/23613520"

文件清单

• ijme_a_1786392_sm4006.docx（24.12 KB）
• ijme_a_1786392_sm4007.docx（20.00 KB）

文件总体积 44.12 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Neuroblastoma (NB) is notorious in childhood cancer because of its high incidence and poor prognosis. The Children’s Oncology Group reported that the 3-year OS in the high-risk (HR) group is 50%, and the HR-NB with bone marrow metastasis in our center is 43.1%. Thousands of families in China suffer from the cost of NB, but the true costs of therapy are unknown; to date, no study has ever performed a detailed therapy costs analysis for NB. The objective of this study was to assess the economic burden of NB treatment in children to the family, to ultimately reduce related expenses for patients and promote the establishment of NB management policy.
Data in this cross-sectional study were collected via questionnaires completed by parents at the outpatient clinic and was verified via a computer system. Therapy costs of children with NB of differing risks were analyzed through descriptive statistics (1 CNY ≈ 0.1412 USD).
Median direct medical costs of low risk (LR), middle risk (MR), and HR NB during treatment were 180.0 (120.0, 300.0), 200.0 (166.0, 300.0), and 650.0 (415.5, 850.0) thousand Chinese yuan (CNY), respectively. Direct non-medical costs including transportation, food, and accommodation were 60.0 (37.0, 100.0), 80.0 (60.0, 120.0), and 100.0 (80.0, 157.5) thousand CNY in the LR, MR, and HR groups, respectively. Additionally, parents accrued work absences to attend treatment, and lost a total of 100.0 (50.0, 150.0) thousand CNY in indirect costs.
Families whose children had relapsed or died were excluded from this analysis and therefore limited the conclusions drawn. Parents were asked to recall costs since initial diagnosis (1–6 years in the past), but this extended time period may have introduced recall bias.
Direct non-medical and indirect costs play an important role in the total treatment costs of NB. Children with NB treated in local hospitals and followed up in hospital specialized in childhood oncology may save many unnecessary expenses. China’'s healthcare system should establish mechanisms and provide financial support for children with NB.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.12601270.v2（source: https://tandf.figshare.com/articles/dataset/Analysis_of_treatment_cost_for_neuroblastoma_to_the_family_A_single-center_cross-sectional_study_in_China/12601270）。