法文版自主偏好指数及其在晚期癌症患者中适应性的有效性验证

数据集获取（Figshare）

• 源站标题：Validity of the French version of the Autonomy Preference Index and its adaptation for patients with advanced cancer
• DOI：10.1371/journal.pone.0227802
• 发布日期：2020-01-14
• 文件数：6 个
• 文件总体积：224.87 KB
• 源站页面：https://plos.figshare.com/articles/dataset/Validity_of_the_French_version_of_the_Autonomy_Preference_Index_and_its_adaptation_for_patients_with_advanced_cancer/11606562

命令行下载

curl -L -o "pone.0227802.s001.docx" "https://ndownloader.figshare.com/files/21006840"
curl -L -o "pone.0227802.s002.docx" "https://ndownloader.figshare.com/files/21006843"
curl -L -o "pone.0227802.s003.docx" "https://ndownloader.figshare.com/files/21006846"
curl -L -o "pone.0227802.s004.docx" "https://ndownloader.figshare.com/files/21006852"
curl -L -o "pone.0227802.s005.csv" "https://ndownloader.figshare.com/files/21006855"
curl -L -o "pone.0227802.s006.xls" "https://ndownloader.figshare.com/files/21006861"

文件清单

• pone.0227802.s001.docx（27.47 KB）
• pone.0227802.s002.docx（25.20 KB）
• pone.0227802.s003.docx（34.13 KB）
• pone.0227802.s004.docx（29.29 KB）
• pone.0227802.s005.csv（67.30 KB）
• pone.0227802.s006.xls（41.47 KB）

文件总体积 224.87 KB（源站 API 实测）。

数据说明

Background
While patient-centered care is recommended as a key dimension for quality improvement, in case of serious illness, patients may have different expectations regarding information and participation in medical decision-making. In oncology, anticipation of disease worsening remains difficult, especially when patient’s preferences towards prognosis medical information are unclear. Valid tools to explore patients’ preferences could help targeting end-of-life discussions, which have been shown to decrease aggressiveness of end-of-life care. Our aim was to establish the validity and reliability of the French version of the Autonomy Preference Index (API) among patients with incurable cancer and in primary care setting. Three supplementary items were specifically developed to evaluate preparedness to anticipate disease deterioration among patients with incurable cancer.
Methods
The psychometric properties of the API translated into French were assessed among patients consecutively recruited from January to March 2017 in the waiting rooms of 19 general practitioners (N = 391) and in an oncology (N = 187) clinic in Paris. Relationships between the newly-developed items and the API subscale scores were studied.
Results
A three correlated factors confirmatory model (two factors related to decision-making and a factor related to information-seeking preferences) showed an acceptable fit on the whole sample and no measurement invariance issue was found across settings, age, sex and educational level. Internal consistency and test-retest reliability were acceptable for the information-seeking and decision-making subscales. One of the newly-developed items on patients’ ability to anticipate a decision on the use of artificial respiration if a sudden deterioration of their illness occurred was not related to the API subscale scores.
Conclusion
The French version of the API was found valid and reliable for use in general practice and oncology settings. The additional items on patient preparedness to anticipate disease deterioration can be of interest to ensure that patient values guide all end-of-life clinical decisions.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0227802（source: https://plos.figshare.com/articles/dataset/Validity_of_the_French_version_of_the_Autonomy_Preference_Index_and_its_adaptation_for_patients_with_advanced_cancer/11606562）。