荷兰住院与死亡率研究：使用全国登记系统两步医疗记录链接的可行性与有效性
基于全国登记系统两步医疗记录链接，研究荷兰儿童癌症幸存者长期住院与死亡趋势的可行性与有效性。
基本信息
资源简介
在荷兰，研究全国住院登记中个体的住院情况需要邮政编码，若个体变更地址则纵向研究住院情况变得困难。该研究旨在报告一种两步医疗记录链接方法在研究队列中考察住院和死亡纵向趋势的可行性与有效性。首先，将1564名儿童癌症幸存者组成的研究队列与包含邮政编码历史和死亡数据的人口登记数据库（GBA）链接；在GBA内按出生年份、性别和日历年匹配抽样参考人群。其次，从医院出院登记（LMR）中提取唯一随访期间出院的住院记录（基于GBA中的出生日期、性别和邮政编码）。根据登记和队列数据计算幸存者死亡和住院的一致性。从GBA检索到1477名（94%）幸存者。唯一/潜在随访的中位百分比为87%（幸存者）和83%（参考者）。住院一致性为94%，死亡一致性为98%。结论：在荷兰住院登记缺乏唯一标识符的情况下，使用两步医疗记录链接方法纵向研究个体住院和死亡是可行且有效的。该数据集可用于研究长期死亡率、住院率、临床事件负担和医疗使用。
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使用方式
数据集获取（Figshare）
- 源站标题：Studying Hospitalizations and Mortality in the Netherlands: Feasible and Valid Using Two-Step Medical Record Linkage with Nationwide Registers
- DOI：10.1371/journal.pone.0132444
- 发布日期：2015-07-06
- 文件数：2 个
- 文件总体积：1.83 MB
- 源站页面：https://plos.figshare.com/articles/dataset/_Studying_Hospitalizations_and_Mortality_in_the_Netherlands_Feasible_and_Valid_Using_Two_Step_Medical_Record_Linkage_with_Nationwide_Registers_/1475669
命令行下载
curl -L -o "S1_Fig.eps" "https://ndownloader.figshare.com/files/2165177"
curl -L -o "S1_Methods.docx" "https://ndownloader.figshare.com/files/2165178"
文件清单
S1_Fig.eps（1.81 MB）S1_Methods.docx（17.30 KB）
文件总体积 1.83 MB（源站 API 实测）。
数据说明
In the Netherlands, the postal code is needed to study hospitalizations of individuals in the nationwide hospitalization register. Studying hospitalizations longitudinally becomes troublesome if individuals change address. We aimed to report on the feasibility and validity of a two-step medical record linkage approach to examine longitudinal trends in hospitalizations and mortality in a study cohort. First, we linked a study cohort of 1564 survivors of childhood cancer with the Municipal Personal Records Database (GBA) which has postal code history and mortality data available. Within GBA, we sampled a reference population matched on year of birth, gender and calendar year. Second, we extracted hospitalizations from the Hospital Discharge Register (LMR) with a date of discharge during unique follow-up (based on date of birth, gender and postal code in GBA). We calculated the agreement of death and being hospitalized in survivors according to the registers and to available cohort data. We retrieved 1477 (94%) survivors from GBA. Median percentages of unique/potential follow-up were 87% (survivors) and 83% (reference persons). Characteristics of survivors and reference persons contributing to unique follow-up were comparable. Agreement of hospitalization during unique follow-up was 94% and agreement of death was 98%. In absence of unique identifiers in the Dutch hospitalization register, it is feasible and valid to study hospitalizations and mortality of individuals longitudinally using a two-step medical record linkage approach. Cohort studies in the Netherlands have the opportunity to study mortality and hospitalization rates over time. These outcomes provide insight into the burden of clinical events and healthcare use in studies on patients at risk of long-term morbidities.
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0132444（source: https://plos.figshare.com/articles/dataset/_Studying_Hospitalizations_and_Mortality_in_the_Netherlands_Feasible_and_Valid_Using_Two_Step_Medical_Record_Linkage_with_Nationwide_Registers_/1475669）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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