S1 Data -
马来西亚沙捞越州癌症患者信息需求与满意度的42项问卷调查数据集，涵盖10个护理领域。
基本信息
资源简介
S1 Data -
【一句话概览】
本数据集是 figshare 公开的结构化表格数据集，收录 1 个文件、合计 235.95 KB，主题涵盖 working towards developing、spearman &# 8217、point likert scale、easily comprehendible formats、clinical nurse specialists，可用于统计建模、特征工程与队列分析，CC BY 4.0 许可开放获取。
【数据集背景】
源站首次发布：2024-07-26。
【数据内容】
源站原始描述：Background The state of Sarawak on the island of Borneo in East Malaysia, in working towards developing and strengthening cancer services through a holistic patient-centred approach, must focus on the comprehensive needs of cancer patients by taking into account the psycho-social, cultural and spiritual aspects of Sarawak’s multi-ethnic, multi-cultural population. Methods A 42-item survey questionnaire was developed and validated with a total of 443 patients. The perceived importance of informat…
【数据结构与技术规格】
文件数 1 个，合计 235.95 KB。pone.0296954.s002.sav：application/x-tar，235.95 KB。数据集 DOI：10.1371/journal.pone.0296954.s002。
【主题与分类】
源站学科分类：Medicine、Biotechnology、Environmental Sciences not elsewhere classified、Biological Sciences not elsewhere classified、Cancer、Science Policy。主题标签：working towards developing、spearman &# 8217、point likert scale、easily comprehendible formats、clinical nurse specialists、strengthening cancer services、cancer journey requires、support services offered、sarawak &# 8217、rank correlation test。
【适用方向】
结构化表格数据可直接用于统计建模、特征工程与队列分析。
【获取与许可】
源站页面：https://plos.figshare.com/articles/dataset/S1_Data_-/26382509
使用许可：CC BY 4.0（https://creativecommons.org/licenses/by/4.0/）。
规范引用：Lim, Melissa Siaw Han; Voon, Pei Jye; Ali, Adibah; Mohamad, Fitri Suraya; Jong, Lin Lin; Chew, Lee Ping; et al. (2024). S1 Data -. PLOS ONE. Dataset
下载信息
注册下载
需要注册 Kaggle 账号并登录后下载，适合需要跟踪下载记录和使用 API 的用户。
暂未开放公开下载
无需注册即可直接获取公开样本或文档，适合快速预览和评估数据集质量。
免登录有偿下载
公开数据集受托下载与技术交付服务。
提供高速下载与技术交付服务（收技术服务费，非数据销售）
暂未开放当前数据集主要来源为 Kaggle 公开托管，完整影像包建议通过原始链接或 Kaggle API 获取。
使用方式
数据集获取（Figshare）
- 源站标题：S1 Data -
- DOI：10.1371/journal.pone.0296954.s002
- 发布日期：2024-07-26
- 文件数：1 个
- 文件总体积：235.95 KB
- 源站页面：https://plos.figshare.com/articles/dataset/S1_Data_-/26382509
命令行下载
curl -L -o "pone.0296954.s002.sav" "https://ndownloader.figshare.com/files/47956622"
文件清单
pone.0296954.s002.sav（235.95 KB）
文件总体积 235.95 KB（源站 API 实测）。
数据说明
Background
The state of Sarawak on the island of Borneo in East Malaysia, in working towards developing and strengthening cancer services through a holistic patient-centred approach, must focus on the comprehensive needs of cancer patients by taking into account the psycho-social, cultural and spiritual aspects of Sarawak’s multi-ethnic, multi-cultural population.
Methods
A 42-item survey questionnaire was developed and validated with a total of 443 patients. The perceived importance of information provided and level of patient satisfaction were assessed with a 5-point Likert scale in 10 domains (Diagnosis, Surgery, Radiotherapy, Systemic therapy, Clinical trials, Pain management, Treatment monitoring, Psychosocial support, Sexual care and fertility issues, and Financial support). A Spearman’s rank correlation test was applied to determine the correlation between response in both item and domain categories for perceived importance and satisfaction.
Results
Overall, patients were more satisfied with information related to cancer diagnosis, treatment and surgery but less satisfied with information pertaining to sexual aspects of care and family planning, psycho-social support and financial support. The majority of patients were satisfied with the level of treatment-related information received but preferred the information to be delivered in more easily comprehendible formats. Sexual aspects of care and family planning, psychosocial support and treatment monitoring post-discharge were perceived as important but seldom addressed by health care professionals due to lack of professional counsellors, social workers and clinical nurse specialists. Many patients face financial toxicity following a cancer diagnosis, particularly when diagnosed with advanced cancer requiring complex multi-modality treatment.
Conclusion
Cancer patients in Sarawak have various unmet information needs. Written information and educational videos in local indigenous languages may be more suitable for Sarawak’s multi-ethnic population. Sexual aspects of care and family planning are challenging but essential topics to discuss, in particular due to the high prevalence of breast and cervical cance
许可
CC BY 4.0
引用
学术使用请引用 DOI 10.1371/journal.pone.0296954.s002（source: https://plos.figshare.com/articles/dataset/S1_Data_-/26382509）。
数据缺失？
依托陕西、四川两大基地，我们与超过十家三甲医院建立直接合作关系，覆盖合规授权、采集治理、专业标注、数据交付的全流程，为AI医疗团队提供即拿即用的高质量临床数据。
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