“如果我得了癌症，那不是因为我是难民”：一项关于叙利亚难民在约旦癌症护理管理的专家利益相关者定性研究

数据集获取（Figshare）

• 源站标题："If I have a cancer, it is not my fault I am a refugee”: A qualitative study with expert stakeholders on cancer care management for Syrian refugees in Jordan
• DOI：10.1371/journal.pone.0222496
• 发布日期：2019-09-27
• 文件数：5 个
• 文件总体积：632.32 KB
• 源站页面：https://plos.figshare.com/articles/dataset/_If_I_have_a_cancer_it_is_not_my_fault_I_am_a_refugee_A_qualitative_study_with_expert_stakeholders_on_cancer_care_management_for_Syrian_refugees_in_Jordan/9914837

命令行下载

curl -L -o "pone.0222496.s001.pdf" "https://ndownloader.figshare.com/files/17825252"
curl -L -o "pone.0222496.s002.pdf" "https://ndownloader.figshare.com/files/17825255"
curl -L -o "pone.0222496.s003.pdf" "https://ndownloader.figshare.com/files/17825258"
curl -L -o "pone.0222496.s004.pdf" "https://ndownloader.figshare.com/files/17825261"
curl -L -o "pone.0222496.s005.pdf" "https://ndownloader.figshare.com/files/17825264"

文件清单

• pone.0222496.s001.pdf（34.13 KB）
• pone.0222496.s002.pdf（282.31 KB）
• pone.0222496.s003.pdf（51.02 KB）
• pone.0222496.s004.pdf（180.91 KB）
• pone.0222496.s005.pdf（83.95 KB）

文件总体积 632.32 KB（源站 API 实测）。

数据说明

Background
Noncommunicable diseases including cancer are widespread amongst the 5.6 million Syrian refugees currently hosted in the Middle East. Given its prevalence as the third leading cause of death in Syria, cancer is likely to be an important health burden among Syrian refugees. Against this background, our aim was to describe the clinical, ethical and policy decision-making experiences of health actors working within the current refugee cancer care system; the impact of refugee cancer care health policies on health care providers and policy makers in this context; and provide suggestions for the way delivery of care should be optimised in a sustained emergency situation.
Methods
From April-July 2016, we conducted in-depth interviews with 12 purposively sampled health officials and health care workers from the Jordanian Ministry of Health, multilateral donors and international non-governmental organisations. Data were analysed using a framework analysis approach to identify systemic, practical and ethical challenges to optimising care for refugees, through author agreement on issues emerging from the data and those linked more directly to areas of questioning.
Results
As has been previously reported, central challenges for policy makers and health providers were the lack of quality cancer prevalence data to inform programming and care delivery for this refugee population, and insufficient health resource allocation to support services. In addition, limited access to international funding for the host country, the absence of long-term funding schemes, and barriers to coordination between institutions and frontline clinicians were seen as key barriers. In this context where economic priorities inevitably drive decision-making on public health policy and individual care provision, frontline healthcare workers and policy makers experienced significant moral distress where duties of care and humanitarian values were often impossible to uphold.
Conclusions
Our findings confirm and expand understanding of the challenges involved in resource allocation decisions for cancer care in refugee populations, and highlight these for the particular situation of long term Sy

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0222496（source: https://plos.figshare.com/articles/dataset/_If_I_have_a_cancer_it_is_not_my_fault_I_am_a_refugee_A_qualitative_study_with_expert_stakeholders_on_cancer_care_management_for_Syrian_refugees_in_Jordan/9914837）。