强直性脊柱炎患者体验定性研究系统评价数据集

数据集获取（Figshare）

• 源站标题：Study characteristic.
• DOI：10.1371/journal.pone.0311798.t001
• 发布日期：2024-10-17
• 文件数：1 个
• 文件总体积：17.92 KB
• 源站页面：https://plos.figshare.com/articles/dataset/Study_characteristic_/27251005

命令行下载

curl -L -o "Table 1.xls" "https://ndownloader.figshare.com/files/49854010"

文件清单

• Table 1.xls（17.92 KB）

文件总体积 17.92 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Objectives
The systematic evaluation of relevant qualitative studies on the experiences of patients with ankylosing spondylitis provides a foundation for the clinical development of personalized disease management programs for this patient category.
Methods
Multiple databases, including PubMed, Web of Science, Embase, Cochrane Library, CINAHL, Scopus, CNKI, Wanfang, CBM, and VIP, were searched for qualitative research literature on the experiences of patients with ankylosing spondylitis from the inception of databases to March 2024. Eligible studies were included, and quality was assessed using the quality evaluation standard of qualitative research at the Joanna Briggs Institute (JBI), Australia (2016). The results were integrated using the meta-aggregation approach.
Results
A total of 11 papers were included in the review. Four themes and 10 subthemes were synthesized: (1) difficulties in diagnosis and treatment; (2) effects of disease symptoms; (3) maladjustment of social roles; and (4) lack of support for disease response.
Conclusion
Medical staff should leverage the advantages of the Internet to enhance knowledge and education on ankylosing spondylitis. They should focus on patients’ mental health, assist in active self-management, provide personalized interventions, promote recovery, and improve the quality of life for patients. Additionally, society should offer a diverse range of support.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0311798.t001（source: https://plos.figshare.com/articles/dataset/Study_characteristic_/27251005）。