S1 数据 -

包含杜氏肌营养不良症患者远程与现场功能评估对比数据,涉及North Star Ambulatory Assessment评分和时间指标。

NIAID Data Ecosystem
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表格intraclass correlation coefficientfindings demonstrate congruenceduchenne muscular dystrophylive stream remoteevaluate whether scoresremote functional assessmentperson functional assessmentperson functional assessmentsstudy 102 ).analysis included patientsfunctional assessmentsremote assessment
S1 Data -

基本信息

模态
表格
大小
0.000019688 GB
许可
CC BY 4.0
创建/更新时间
2026-10-17
版本
v1

资源简介

S1 数据 -

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集,收录 1 个文件、合计 19.69 KB,主题涵盖 intraclass correlation coefficient、findings demonstrate congruence、duchenne muscular dystrophy、live stream remote、evaluate whether scores,可用于统计建模、特征工程与队列分析,CC BY 4.0 许可开放获取。

【数据集背景】

本数据集源站标题为《S1 Data -》。源站首次发布:2024-05-16。

【数据内容】

源站原始描述:Conducting functional assessments remotely can help alleviate the burden of in-person assessment on patients with Duchenne muscular dystrophy and their caregivers. The objective of this study was to evaluate whether scores from remote functional assessment of patients with Duchenne muscular dystrophy correspond to in-person scores on the same functional assessments. Remote live stream versus in-person scores on the North Star Ambulatory Assessment (including time [seconds] to complete the 10-met…

【数据结构与技术规格】

文件数 1 个,合计 19.69 KB。pone.0300700.s008.xlsx:application/vnd.openxmlformats-officedocument.spreadsheetml.sheet,19.69 KB。数据集 DOI:10.1371/journal.pone.0300700.s008。

【主题与分类】

源站学科分类:Cell Biology、Biotechnology、Environmental Sciences not elsewhere classified、Chemical Sciences not elsewhere classified、Biological Sciences not elsewhere classified、Science Policy。主题标签:intraclass correlation coefficient、findings demonstrate congruence、duchenne muscular dystrophy、live stream remote、evaluate whether scores、remote functional assessment、person functional assessment、person functional assessments、study 102 ).、analysis included patients。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://plos.figshare.com/articles/dataset/S1_Data_-/25842506

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Lowes, Linda P.; Alfano, Lindsay N.; Iammarino, Megan A.; Reash, Natalie F.; Giblin, Kathryn; Hu, Larry; et al. (2024). S1 Data -. PLOS ONE. Dataset

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专家保障全链路合规授权与标注交付

陕川双基地 × 超十家三甲医院直连

从合规授权、采集治理、专业标注到数据集交付,我们提供全链路闭环服务,让高质量临床数据即拿即用。

⚡️ 需要原始数据或标注支持?联系我们获取定制方案。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "pone.0300700.s008.xlsx" "https://ndownloader.figshare.com/files/46379444"

文件清单

  • pone.0300700.s008.xlsx(19.69 KB)

文件总体积 19.69 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Conducting functional assessments remotely can help alleviate the burden of in-person assessment on patients with Duchenne muscular dystrophy and their caregivers. The objective of this study was to evaluate whether scores from remote functional assessment of patients with Duchenne muscular dystrophy correspond to in-person scores on the same functional assessments. Remote live stream versus in-person scores on the North Star Ambulatory Assessment (including time [seconds] to complete the 10-meter walk/run and time to rise from the floor [supine to stand]) were assessed using statistical analyses, including intraclass correlation coefficient, and Pearson, Spearman, and Bland-Altman analyses. The remote and in-clinic assessments had to occur within 2 weeks of one another to be considered for this analysis. This analysis included patients with Duchenne muscular dystrophy, aged 4 to 7 years. Participants in this analysis received delandistrogene moxeparvovec (as part of SRP-9001-101 [Study 101; NCT03375164] or SRP-9001-102 [Study 102; NCT03769116]) or were randomized to receive placebo (in Part 1 of Study 102). This study evaluates score reproducibility between live stream remote scoring versus in-person functional assessments as determined by intraclass correlation coefficient, and Pearson, Spearman, and Bland-Altman analyses. The results showed that scores from remote functional assessment of patients with Duchenne muscular dystrophy strongly correlated with those obtained in person. These findings demonstrate congruence between live stream remote and in-person functional assessment and suggest that remote assessment has the potential to reduce the burden on a family by supplementing in-clinic visits.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0300700.s008(source: https://plos.figshare.com/articles/dataset/S1_Data_-/25842506)。

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