皮肤利什曼病对患者生活质量及诊断成本影响的调查数据

皮肤利什曼病调查数据集:包含CL患者生活质量(DLQI)与诊断成本(患者和卫生系统)的横断面调查应答数据及问卷。

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2020-08-28 更新
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文本、表格cutaneous leishmaniasisDermatology Life Quality IndexDLQIQuality of LifeQOL analysissurvey dataCross-sectional survey dataAfghanistanmorbiditysocial stigmaclinical datachronic disease
Survey data from patients and medical staff on the impact of cutaneous leishmaniasis on patient’s quality of life and on the cost of diagnostic to the patients and to the health system

基本信息

模态
文本、表格
大小
0.000083674 GB
许可
CC0
创建/更新时间
2020-08-28
版本
v1

资源简介

皮肤利什曼病对患者生活质量及诊断成本影响的调查数据

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集,收录 3 个文件、合计 83.67 KB,主题涵盖 cutaneous leishmaniasis、Dermatology Life Quality Index、DLQI、Quality of Life、QOL analysis,可用于统计建模、特征工程与队列分析,CC0 许可开放获取。

【数据集背景】

本数据集源站标题为《Survey data from patients and medical staff on the impact of cutaneous leishmaniasis on patient’s quality of life and on the cost of diagnostic to the patients and to the health system》。配套论文《Cost Effectiveness of New Diagnostic Tools for Cutaneous Leishmaniasis in Afghanistan》发表于 Applied Health Economics and Health Policy(2018),DOI:10.1007/s40258-018-0449-8。项目资助方:This study has been supported by funds from: the European Union’s Horizon 2020 research and innovation program under the Marie Sklodowska-Curie grant agreement N°642609, the Federal Ministry of Education and Research, Germany (KfW grant reference number 202060457, Development of Products for the Prevention, Diagnosis and Treatment of Neglected and Poverty Related Diseases; https://www.bmbf.de/en), the UK aid from the UK Government, the Government of Switzerland, and the Government of The Netherlands which also contributed to FIND’s participation in this work.。源站首次发布:2018-11-27。

【数据内容】

源站原始描述:This dataset contains cross-sectional survey response data and sample questionnaires administered to cutaneous leishmaniasis (CL) patients at the clinic of the National Malaria and Leishmaniasis Control Program (NMLCP), Kabul, from April to June 2016. Data files are in MS Excel .xlsx format, questionnaire files in MS Word .docx format, both are accessible via MS Office or open office applications. The related study aims to better understand and capture the cost of diagnostic to the patients and…

【数据结构与技术规格】

文件数 3 个,合计 83.67 KB。Questionnaire_laboratory and medical_staff_CLeishPOC_Afghanistan.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,19.58 KB。Questionnaire_Drugs and Treatment_CLeishPOC_Afghanistan.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,31.16 KB。CL DLQI and Patient Cost database.xlsx:application/vnd.openxmlformats-officedocument.spreadsheetml.sheet,32.93 KB。数据集 DOI:10.6084/m9.figshare.6949043.v1。

【主题与分类】

源站学科分类:Health Care、Infectious Diseases、Clinical Sciences not elsewhere classified。主题标签:cutaneous leishmaniasis、Dermatology Life Quality Index、DLQI、Quality of Life、QOL analysis、survey data、Cross-sectional survey data、Afghanistan、morbidity、social stigma。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://springernature.figshare.com/articles/dataset/Survey_data_from_patients_and_medical_staff_on_the_impact_of_cutaneous_leishmaniasis_on_patient_s_quality_of_life_and_on_the_cost_of_diagnostic_to_the_patients_and_to_the_health_system/6949043

使用许可:CC0(https://creativecommons.org/publicdomain/zero/1.0/)。

规范引用:Aerts, Celine; vink, Martijn; Pashtoon, Sayed Jalal; Nahzat, Sami; Picado, Albert; Cruz, Isra; et al. (2018). Survey data from patients and medical staff on the impact of cutaneous leishmaniasis on patient’s quality of life and on the cost of diagnostic to the patients and to the health system. figs…

【使用注意】

· 源站最后修改于 2023-06-01,引用时请注意版本时效。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "Questionnaire_laboratory and  medical_staff_CLeishPOC_Afghanistan.docx" "https://ndownloader.figshare.com/files/12743864"
curl -L -o "Questionnaire_Drugs and  Treatment_CLeishPOC_Afghanistan.docx" "https://ndownloader.figshare.com/files/12743861"
curl -L -o "CL DLQI and Patient Cost database.xlsx" "https://ndownloader.figshare.com/files/12743846"

文件清单

  • Questionnaire_laboratory and medical_staff_CLeishPOC_Afghanistan.docx(19.58 KB)
  • Questionnaire_Drugs and Treatment_CLeishPOC_Afghanistan.docx(31.16 KB)
  • CL DLQI and Patient Cost database.xlsx(32.93 KB)

文件总体积 83.67 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

This dataset contains cross-sectional survey response data and sample questionnaires administered to cutaneous leishmaniasis (CL) patients at the clinic of the National Malaria and Leishmaniasis Control Program (NMLCP), Kabul, from April to June 2016.
Data files are in MS Excel .xlsx format, questionnaire files in MS Word .docx format, both are accessible via MS Office or open office applications.
The related study aims to better understand and capture the cost of diagnostic to the patients and the health system as well as the impact of a cutaneous leishmaniasis episode on patient’s quality of life. Diagnostic costs were collected from three different questionnaires and included costs borne by patients, medical staff and equipment costs as well as treatment costs. As for the quality of life, the standardized ‘Dermatology Life Quality Index’ (DLQI) questionnaire was administered to individuals enrolled in the study. The DLQI questionnaire aims to assess how skin conditions impacted on the quality of life of the individual over the preceding week.
CL_DLQI_database.xlsx and CL_Patient_Cost_database.xlsx:
The data files hold response data gathered from the ‘patient cost questionnaire’, administered to a subset (n=111) of the
274 individuals enrolled in the study, regardless of their diagnostic results.
The first half of the ‘‘patient cost’’ questionnaire was filled in on the day of diagnosis and
the remaining half was filled in at the end of the treatment period by positive
patients only, with the help of a fieldworker. This questionnaire gathers
information related to direct (i.e. transportation) and indirect (i.e. wage
loss during travelling and incapacity to work during illness period) costs
associated with a potential CL episode in Kabul, Afghanistan. Response data on the socioeconomic background of the study participants is also provided.

CL_DLQI_database.xlsx records controlled response values of “A little, “A lot” or “Very much” against questions on how much CL has affected the quality of life of the individual over the past week.

CL_Patient_Cost_database.xlsx records quantitative, controlled response and qualitative (long form) responses.

Individual part

许可

CC0

引用

学术使用请引用 DOI 10.6084/m9.figshare.6949043.v1(source: https://springernature.figshare.com/articles/dataset/Survey_data_from_patients_and_medical_staff_on_the_impact_of_cutaneous_leishmaniasis_on_patient_s_quality_of_life_and_on_the_cost_of_diagnostic_to_the_patients_and_to_the_health_system/6949043)。

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