患者和医护人员对使用生物DMARDs导致的药物不良反应负担的看法：一项定性研究

数据集获取（Figshare）

• 源站标题：Patients’ and health-care professionals’ perspectives on adverse drug reaction burden attributed to the use of biological DMARDs: a qualitative study
• DOI：10.6084/m9.figshare.21379544.v3
• 发布日期：2022-10-28
• 文件数：4 个
• 文件总体积：100.55 KB
• 源站页面：https://tandf.figshare.com/articles/dataset/Patients_and_health_care_professionals_perspectives_on_adverse_drug_reaction_burden_attributed_to_the_use_of_biological_DMARDs_a_qualitative_study/21379544

命令行下载

curl -L -o "ieds_a_2134344_sm6210.docx" "https://ndownloader.figshare.com/files/37977990"
curl -L -o "ieds_a_2134344_sm6209.docx" "https://ndownloader.figshare.com/files/37977993"
curl -L -o "ieds_a_2134344_sm6208.docx" "https://ndownloader.figshare.com/files/37977996"
curl -L -o "ieds_a_2134344_sm6207.docx" "https://ndownloader.figshare.com/files/37977999"

文件清单

• ieds_a_2134344_sm6210.docx（15.75 KB）
• ieds_a_2134344_sm6209.docx（39.85 KB）
• ieds_a_2134344_sm6208.docx（21.15 KB）
• ieds_a_2134344_sm6207.docx（23.79 KB）

文件总体积 100.55 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Previous studies showed a discrepancy between health-care professionals’ (HCPs’) and patients’ perspective on adverse drug reaction (ADR) burden. However, it is unclear which factors make an ADR burdensome. We aimed to give insight into why ADRs are perceived as burdensome by inflammatory rheumatic disease (IRD) patients, and whether this differs from the HCPs’ perspective.
A qualitative study was conducted using Dutch Biologic Monitor data. Participants received bimonthly questionnaires on experienced ADRs attributed to biological DMARDs and were asked to elaborate on ADR burden using a Likert-type scale and an open-ended question for clarification. Data of 440 IRD patients were analyzed following thematic analysis. A similar analysis was done with semi-structured interviews with 13 HCPs.
We identified seven themes associated with ADR burden: ‘effect on medication prescription,’ ‘impact on appearance,’ ‘impact on autonomy,’ ‘impact on daily life,’ ‘psychological consequences,’ ‘distressing aspects of ADR,’ and ‘physical consequences.’ Identical themes were identified by HCPs, although they identified most subthemes in ‘psychological consequences,’ and less subthemes in ‘impact on daily life’ and ‘impact on autonomy.’
Patients describe perceived ADR burden in both physical and psychological themes. The HCPs’ perspective is comparable, but mostly focuses on psychological impact.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.21379544.v3（source: https://tandf.figshare.com/articles/dataset/Patients_and_health_care_professionals_perspectives_on_adverse_drug_reaction_burden_attributed_to_the_use_of_biological_DMARDs_a_qualitative_study/21379544）。