镰状细胞病儿童早期干预服务提供者视角调查数据表2

数据集获取（Figshare）

• 源站标题：Datasheet2_Awareness, access, and communication: provider perspectives on early intervention services for children with sickle cell disease.pdf
• DOI：10.3389/fped.2024.1366522.s002
• 发布日期：2024-03-25
• 文件数：1 个
• 文件总体积：252.57 KB
• 源站页面：https://frontiersin.figshare.com/articles/dataset/Datasheet2_Awareness_access_and_communication_provider_perspectives_on_early_intervention_services_for_children_with_sickle_cell_disease_pdf/25469986

命令行下载

curl -L -o "Datasheet2_Awareness, access, and communication: provider perspectives on early intervention services for children with sickle cell disease.pdf" "https://ndownloader.figshare.com/files/45257812"

文件清单

• Datasheet2_Awareness, access, and communication: provider perspectives on early intervention services for children with sickle cell disease.pdf（252.57 KB）

文件总体积 252.57 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

PurposeThis study aimed to identify determinants influencing the utilization of early intervention services among young children with sickle cell disease (SCD) based on perspectives from medical and early intervention providers.
Design and methodsEarly intervention and medical providers from the catchment area surrounding St. Jude Children’'s Research Hospital and Washington University were recruited (20 total providers). Interviews were completed over the phone and audio recorded. All interviews were transcribed verbatim, coded, and analyzed using inductive thematic analysis.
ResultsThree overarching themes were identified from both groups: Awareness (e.g., lack of awareness about the EI system and SCD), Access (e.g., difficulties accessing services), and Communication (e.g., limited communication between medical and early intervention providers, and between providers and families). Although these three themes were shared by medical and early intervention providers, the differing perspectives of each produced subthemes unique to the two professional fields.
ConclusionsEarly intervention services can limit the neurodevelopmental deficits experienced by young children with SCD; however, most children with SCD do not receive these services. The perspectives of early intervention and medical providers highlight several potential solutions to increase early intervention utilization among young children with SCD.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.3389/fped.2024.1366522.s002（source: https://frontiersin.figshare.com/articles/dataset/Datasheet2_Awareness_access_and_communication_provider_perspectives_on_early_intervention_services_for_children_with_sickle_cell_disease_pdf/25469986）。