巴西东北部地区儿童和青少年镰状细胞病的临床和护理概况

数据集获取（Figshare）

• 源站标题：Clinical and care profiles of children and adolescents with Sickle Cell Disease in the Brazilian Northeast region
• DOI：10.6084/m9.figshare.11609226.v1
• 发布日期：2020-01-15
• 文件数：4 个
• 文件总体积：230.63 KB
• 源站页面：https://scielo.figshare.com/articles/dataset/Clinical_and_care_profiles_of_children_and_adolescents_with_Sickle_Cell_Disease_in_the_Brazilian_Northeast_region/11609226

命令行下载

curl -L -o "1519-3829-rbsmi-19-04-0881-gf01.jpg" "https://ndownloader.figshare.com/files/21025611"
curl -L -o "Table_1.xls" "https://ndownloader.figshare.com/files/21025617"
curl -L -o "Table_2.xls" "https://ndownloader.figshare.com/files/21025626"
curl -L -o "Table_3.xls" "https://ndownloader.figshare.com/files/21025638"

文件清单

• 1519-3829-rbsmi-19-04-0881-gf01.jpg（213.74 KB）
• Table_1.xls（5.63 KB）
• Table_2.xls（5.63 KB）
• Table_3.xls（5.63 KB）

文件总体积 230.63 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Abstract Objectives: to describe the clinical epidemiological and care profiles of pediatric patients with sickle cell disease. Methods: a descriptive study of all (48) children and adolescents with sickle cell disease, assisted at a public referral hospital in Paraíba State. The information were obtained from the patients’ medical records and interviews were analyzed by using the Epi-Info program 7.2 version, frequency tables were built for the categorical variables and the central measurements and dispersion tendencies were calculated for the variables related to age and hospitalizations. Results: the patients’ age ranged from 15 months to 19 years old (median 8.6 years old); 91.7% considered their skin color mixed/black; 81.3% belong to D and E social class; 48% of the responsible guardians reported to have less than nine years of schooling; 70.9% lived in other cities; 93.8% received late diagnosis and 87.5% had irregular outpatient follow-up, 62,5% had an incomplete or outdated vaccination record. There were 226 hospitalizations; painful crises were the most common causes (55.7%). Each patient was hospitalized, about 5.2 times in the period; the median of total days for being hospitalized was 28. There were no deaths. Cardiac (56.2%) and hepatobiliary (54.3%) were the most common chronic compli-cations. Conclusions: sickle cell disease is a neglected clinical condition in the Brazilian Northeast region, where the appropriate political support for the patients is not fulfilled.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.11609226.v1（source: https://scielo.figshare.com/articles/dataset/Clinical_and_care_profiles_of_children_and_adolescents_with_Sickle_Cell_Disease_in_the_Brazilian_Northeast_region/11609226）。