五个欧洲国家医生对血液供应短缺的经验及影响骨髓增生异常综合征患者临床、经济和人文结果的主要因素

基于欧洲五国378名医生调查,研究血液短缺对MDS患者临床、经济及人文结果的影响。

Figshare
2022-12-01 更新
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表格Blood supply shortagemyelodysplastic syndromesphysician surveytransfusion
Physicians’ experience in blood supply shortages and the top factors that impact the clinical, economic, and humanistic outcomes of patients with myelodysplastic syndromes in 5 European countries

基本信息

模态
表格
大小
0.000104695 GB
许可
CC BY 4.0
创建/更新时间
2022-12-01
版本
v2

资源简介

五个欧洲国家医生对血液供应短缺的经验及影响骨髓增生异常综合征患者临床、经济和人文结果的主要因素

【数据集背景】

本数据集源站标题为《Physicians’ experience in blood supply shortages and the top factors that impact the clinical, economic, and humanistic outcomes of patients with myelodysplastic syndromes in 5 European countries》。配套论文《Physicians’ experience in blood supply shortages and the top factors that impact the clinical, economic, and humanistic outcomes of patients with myelodysplastic syndromes in 5 European countries》发表于 Current Medical Research and Opinion(2022),DOI:10.1080/03007995.2022.2151735。源站首次发布:2022-12-07。

【数据内容】

源站原始描述:Blood supply shortages may create unnecessary burden, including treatment delay, worsened quality of life, or increased healthcare resource utilization in patients with myelodysplastic syndromes (MDS). This study examined physicians’ experience with blood supply shortages in the MDS population. Additionally, physicians’ perspectives on the factors that impact clinical, economic, and humanistic outcomes of patients with MDS were investigated. A total of 378 physicians primarily specializing in he…

【数据结构与技术规格】

文件数 2 个,合计 104.69 KB。icmo_a_2151735_sm4410.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,56.18 KB。icmo_a_2151735_sm4409.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,48.52 KB。数据集 DOI:10.6084/m9.figshare.21655991.v2。

【主题与分类】

源站学科分类:Medicine、Sociology、Biological Sciences not elsewhere classified、Developmental Biology、Science Policy、Hematology。主题标签:Blood supply shortage、myelodysplastic syndromes、physician survey、transfusion。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面:https://tandf.figshare.com/articles/dataset/Physicians_experience_in_blood_supply_shortages_and_the_top_factors_that_impact_the_clinical_economic_and_humanistic_outcomes_of_patients_with_myelodysplastic_syndromes_in_five_European_countries/21655991

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Physicians’ experience in blood supply shortages and the top factors that impact the clinical, economic, and humanistic outcomes of patients with myelodysplastic syndromes in 5 European countries. Taylor & Francis. Gupta, Shaloo; Kulasekararaj, Austin G.; Costantino, Halley; Grisolano, Jay; Tang, Ja…

【使用注意】

· 源站最后修改于 2023-05-31,引用时请注意版本时效。

官方服务

专家保障全链路合规授权与标注交付

陕川双基地 × 超十家三甲医院直连

从合规授权、采集治理、专业标注到数据集交付,我们提供全链路闭环服务,让高质量临床数据即拿即用。

⚡️ 需要原始数据或标注支持?联系我们获取定制方案。

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

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有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "icmo_a_2151735_sm4410.docx" "https://ndownloader.figshare.com/files/38466559"
curl -L -o "icmo_a_2151735_sm4409.docx" "https://ndownloader.figshare.com/files/38466562"

文件清单

  • icmo_a_2151735_sm4410.docx(56.18 KB)
  • icmo_a_2151735_sm4409.docx(48.52 KB)

文件总体积 104.69 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Blood supply shortages may create unnecessary burden, including treatment delay, worsened quality of life, or increased healthcare resource utilization in patients with myelodysplastic syndromes (MDS). This study examined physicians’ experience with blood supply shortages in the MDS population. Additionally, physicians’ perspectives on the factors that impact clinical, economic, and humanistic outcomes of patients with MDS were investigated.
A total of 378 physicians primarily specializing in hematology/oncology across the UK, France, Germany, Italy, and Spain completed the survey (n ≈ 75 in each country). Physicians answered questions regarding adequacy of blood supply for patients with MDS who require red blood cell (RBC) transfusions and identified factors impacting the clinical, economic, and humanistic outcomes in the MDS population.
Over 65% of physicians reported that their patients with MDS requiring RBC transfusions encountered RBC transfusion delays due to blood supply shortage. Among physicians who reported delays, 13.8% of patients were impacted, ranging from 11.0% in Spain to 19.4% in Italy. On average, patients experienced a 4.2-day delay in receiving RBC transfusions due to blood supply shortages, and 16.7% of patients required additional healthcare provider visits. Eastern Cooperative Oncology Group performance status, threshold hemoglobin levels, and age were the top factors reported by more than two-thirds of physicians that impact outcomes of patients with MDS.
Our findings support the need for new treatments in MDS that reduce transfusions and thus blood supply needs, and that would have a beneficial effect on clinical, humanistic, and economic outcomes.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.6084/m9.figshare.21655991.v2(source: https://tandf.figshare.com/articles/dataset/Physicians_experience_in_blood_supply_shortages_and_the_top_factors_that_impact_the_clinical_economic_and_humanistic_outcomes_of_patients_with_myelodysplastic_syndromes_in_five_European_countries/21655991)。

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