遗传性出血性疾病患者护理不平等性的医疗服务提供者视角数据集

数据集获取（Figshare）

• 源站标题：Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders
• DOI：10.1371/journal.pone.0229099
• 发布日期：2020-02-20
• 文件数：2 个
• 文件总体积：50.59 KB
• 源站页面：https://plos.figshare.com/articles/dataset/Healthcare_provider_perspectives_on_inequities_in_access_to_care_for_patients_with_inherited_bleeding_disorders/11878827

命令行下载

curl -L -o "pone.0229099.s001.docx" "https://ndownloader.figshare.com/files/21780162"
curl -L -o "pone.0229099.s002.xlsx" "https://ndownloader.figshare.com/files/21780165"

文件清单

• pone.0229099.s001.docx（22.98 KB）
• pone.0229099.s002.xlsx（27.61 KB）

文件总体积 50.59 KB（源站 API 实测）。

数据加载示例（图像类）

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Introduction
The ways in which social determinants of health affect patients with inherited bleeding disorders remains unclear. The objective of this study was to understand healthcare provider perspectives regarding access to care and diagnostic delay amongst this patient population.
Methods
A healthcare provider survey comprising 24 questions was developed, tested, and subsequently disseminated online with recruitment to all members of The Association of Hemophilia Clinic Directors of Canada (N = 73), members of the Canadian Association of Nurses in Hemophilia Care (N = 40) and members of the Canadian Physiotherapists in Hemophilia Care (N = 44).
Results
There were 70 respondents in total, for a total response rate of 45%. HCPs felt that there were diagnostic delays for patients with mild symptomatology (71%, N = 50), women presenting with abnormal uterine bleeding as their only or primary symptom (59%, N = 41), and patients living in rural Canada (50%, N = 35). Fewer respondents felt that factors such as socioeconomic status (46%, N = 32) or race (21%, N = 15) influenced access to care, particularly as compared to the influence of rural location (77%, N = 54).
Discussion
We found that healthcare providers identified patients with mild symptomatology, isolated abnormal uterine bleeding, and residence in rural locations as populations at risk for inequitable access to care. These factors warrant further study, and will be investigated further by our group using our nation-wide patient survey and ongoing in-depth qualitative patient interviews.

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0229099（source: https://plos.figshare.com/articles/dataset/Healthcare_provider_perspectives_on_inequities_in_access_to_care_for_patients_with_inherited_bleeding_disorders/11878827）。