Name: 血友病A真实世界研究附录
Creator: Becaris
License: CC BY-NC-ND 4.0

基本信息

模态

表格

大小

0.000166314 GB

许可

CC BY-NC-ND 4.0

创建/更新时间

2026-04-29

版本

v1

资源简介

血友病A真实世界研究附录

【一句话概览】

本数据集是 figshare 公开的结构化表格数据集，收录 1 个文件、合计 166.31 KB，主题涵盖 delivery of healthcare、factor VIII、hemophilia A、hemorrhage，可用于统计建模、特征工程与队列分析，CC BY-NC-ND 4.0 许可开放获取。

【数据集背景】

本数据集源站标题为《Appendices: Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age》。配套论文《Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age》发表于 Journal of Comparative Effectiveness Research（2021），DOI：10.2217/cer-2021-0109。项目资助方：This study, and preparation of this article, were sponsored by Genentech, Inc., and conducted as part of a research collaboration with Humana。源站首次发布：2024-01-03。

【数据内容】

源站原始描述：These are peer-reviewed appendices for the article ''Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age'' published in the Journal of Comparative Effectiveness Research. - Appendix A. NDC, GPI, and HCPCS Codes for Hemophilia-related Therapies. - Appendix B. ICD-9/10 and CPT Codes for Hemophilia-related Diagnoses and Events. - Appendix C. Exclusions. - Appendix D. LOINC Codes. - Appendix E. ICD-9/10 Procedure and CPT Codes for Joint Pr…

【数据结构与技术规格】

文件数 1 个，合计 166.31 KB。Appendices_cer-2021-0109.xlsx：application/vnd.openxmlformats-officedocument.spreadsheetml.sheet，166.31 KB。数据集 DOI：10.6084/m9.figshare.24936522.v1。

【主题与分类】

源站学科分类：Haematology。主题标签：delivery of healthcare、factor VIII、hemophilia A、hemorrhage。

【适用方向】

结构化表格数据可直接用于统计建模、特征工程与队列分析。

【获取与许可】

源站页面：https://becaris.figshare.com/articles/dataset/Appendices_Real-world_treatment_clinical_outcomes_and_healthcare_resource_utilization_among_persons_with_hemophilia_A_by_age/24936522

使用许可：CC BY-NC-ND 4.0（https://creativecommons.org/licenses/by-nc-nd/4.0/）。

规范引用：Caplan, Eleanor O; Patel, Anisha M.; DeClue, Richard W; Sehman, Marina; Cornett, Daniel; Shaffer, Tiffany Fair; et al. (2024). Appendices: Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age. Becaris. Dataset

【使用注意】

· 源站最后修改于 2026-04-29，引用时请注意版本时效。

原始链接

https://becaris.figshare.com/articles/dataset/Appendices_Real-world_treatment_clinical_outcomes_and_healthcare_resource_utilization_among_persons_with_hemophilia_A_by_age/24936522/1

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使用方式

数据集获取（Figshare）

源站标题：Appendices: Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age
DOI：10.6084/m9.figshare.24936522.v1
发布日期：2024-01-03
文件数：1 个
文件总体积：166.31 KB
源站页面：https://becaris.figshare.com/articles/dataset/Appendices_Real-world_treatment_clinical_outcomes_and_healthcare_resource_utilization_among_persons_with_hemophilia_A_by_age/24936522

命令行下载

curl -L -o "Appendices_cer-2021-0109.xlsx" "https://ndownloader.figshare.com/files/43891017"

文件清单

Appendices_cer-2021-0109.xlsx（166.31 KB）

文件总体积 166.31 KB（源站 API 实测）。

数据说明

These are peer-reviewed appendices for the article ‘‘Real-world treatment, clinical outcomes and healthcare resource utilization among persons with hemophilia A by age’’ published in the Journal of Comparative Effectiveness Research.

Appendix A. NDC, GPI, and HCPCS Codes for Hemophilia-related Therapies.
Appendix B. ICD-9/10 and CPT Codes for Hemophilia-related Diagnoses and Events.
Appendix C. Exclusions.
Appendix D. LOINC Codes.
Appendix E. ICD-9/10 Procedure and CPT Codes for Joint Procedures and Surgery.
Appendix F. Fracture Codes.
Summary: Aim: Examine real-world characteristics, treatment patterns, and outcomes among treated persons with hemophilia A (PwHA) stratified by age. Patients & methods: This study utilized US claims data from 1 January 2007–31 July 2018 from the Humana Research Database. Unadjusted comparisons were conducted across PwHA (Results: A total of 294 PwHA were identified; 21.1% experienced ≥1 bleeding event, and 41.2 and 53.1% had evidence of arthropathy or related disorders, and pain, respectively. Along with all-cause and hemophilia-related healthcare resource utilization (HCRU), these were highest among PwHA aged 56–89 years. Conclusion: Insights into treatment, outcomes and HCRU may identify opportunities for enhanced disease management, particularly in older PwHA.