澳大利亚眼保健专业人员对年龄相关性黄斑变性(AMD)护理观点的定性探索

澳大利亚眼保健专业人员对AMD护理障碍和促进因素的定性研究,包含焦点小组和访谈转录文本。

Figshare
2020-02-11 更新
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文本AMD carepatient support systemsscoreFactors impacting AMD carebarrierAustralian eyecare professionalsAge-Related Macular Degenerationenablerfocus groups
A qualitative exploration of Australian eyecare professional perspectives on Age-Related Macular Degeneration (AMD) care

基本信息

模态
文本
大小
0.000127424 GB
许可
CC BY 4.0
创建/更新时间
2020-02-11
版本
v1

资源简介

澳大利亚眼保健专业人员对年龄相关性黄斑变性(AMD)护理观点的定性探索

【数据集背景】

本数据集源站标题为《A qualitative exploration of Australian eyecare professional perspectives on Age-Related Macular Degeneration (AMD) care》。配套论文《A qualitative exploration of Australian eyecare professional perspectives on Age-Related Macular Degeneration (AMD) care》发表于 PLOS ONE(2020),DOI:10.1371/journal.pone.0228858。源站首次发布:2020-02-11。

【数据内容】

源站原始描述:Despite the existence of evidence-based recommendations to decrease risk and progression of Age-Related Macular Degeneration (AMD) for some time, self-reported practices suggest that eyecare professionals’ advice and people with AMD’s adherence to these recommendations can be very poor. This study uses qualitative methods to explore Australian eyecare professionals’ perspective on barriers to effective AMD care. Seven focus groups involving 65 optometrists were conducted by an experienced facili…

【数据结构与技术规格】

文件数 5 个,合计 127.42 KB。pone.0228858.s001.doc:application/msword,38.40 KB。pone.0228858.s002.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,29.57 KB。pone.0228858.s003.docx:application/vnd.openxmlformats-officedocument.wordprocessingml.document,19.57 KB。数据集 DOI:10.1371/journal.pone.0228858。

【主题与分类】

源站学科分类:Medicine、Cell Biology、Pharmacology、Biotechnology、Environmental Sciences not elsewhere classified、Sociology。主题标签:AMD care、patient support systems、score、Factors impacting AMD care、barrier、Australian eyecare professionals、Age-Related Macular Degeneration、enabler、focus groups。

【适用方向】

文本类数据可用于医学自然语言处理,如命名实体识别、信息抽取与文本分类。

【获取与许可】

源站页面:https://plos.figshare.com/articles/dataset/A_qualitative_exploration_of_Australian_eyecare_professional_perspectives_on_Age-Related_Macular_Degeneration_AMD_care/11838159

使用许可:CC BY 4.0(https://creativecommons.org/licenses/by/4.0/)。

规范引用:Jalbert, Isabelle; Rahardjo, Dian; Yashadhana, Aryati; Liew, Gerald; Gopinath, Bamini (2020). A qualitative exploration of Australian eyecare professional perspectives on Age-Related Macular Degeneration (AMD) care. PLOS ONE. Dataset

【使用注意】

· 源站最后修改于 2023-06-01,引用时请注意版本时效。

官方服务

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下载信息

注册下载

需要注册 Kaggle 账号并登录后下载,适合需要跟踪下载记录和使用 API 的用户。

暂未开放

公开下载

无需注册即可直接获取公开样本或文档,适合快速预览和评估数据集质量。

免登录

有偿下载

公开数据集受托下载与技术交付服务。

提供高速下载与技术交付服务(收技术服务费,非数据销售)

暂未开放

当前数据集主要来源为 Kaggle 公开托管,完整影像包建议通过原始链接或 Kaggle API 获取。

使用方式

数据集获取(Figshare)

命令行下载

curl -L -o "pone.0228858.s001.doc" "https://ndownloader.figshare.com/files/21679317"
curl -L -o "pone.0228858.s002.docx" "https://ndownloader.figshare.com/files/21679320"
curl -L -o "pone.0228858.s003.docx" "https://ndownloader.figshare.com/files/21679323"
curl -L -o "pone.0228858.s004.docx" "https://ndownloader.figshare.com/files/21679326"
curl -L -o "pone.0228858.s005.docx" "https://ndownloader.figshare.com/files/21679329"

文件清单

  • pone.0228858.s001.doc(38.40 KB)
  • pone.0228858.s002.docx(29.57 KB)
  • pone.0228858.s003.docx(19.57 KB)
  • pone.0228858.s004.docx(22.94 KB)
  • pone.0228858.s005.docx(16.94 KB)

文件总体积 127.42 KB(源站 API 实测)。

数据加载示例(图像类)

from PIL import Image
import glob, os

files = (glob.glob(os.path.join(path, "**", "*.png"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.jpg"), recursive=True)
       + glob.glob(os.path.join(path, "**", "*.tif"), recursive=True))
print("图像文件数:", len(files))
img = Image.open(files[0]); print("尺寸/模式:", img.size, img.mode)

# torchvision Dataset 方式:
# from torchvision import datasets
# ds = datasets.ImageFolder(path)  # 要求 子目录=类别

目录组织与标注格式以源站说明和下载后实际文件为准。

数据说明

Despite the existence of evidence-based recommendations to decrease risk and progression of Age-Related Macular Degeneration (AMD) for some time, self-reported practices suggest that eyecare professionals’ advice and people with AMD’s adherence to these recommendations can be very poor. This study uses qualitative methods to explore Australian eyecare professionals’ perspective on barriers to effective AMD care. Seven focus groups involving 65 optometrists were conducted by an experienced facilitator. A nominal group technique was used to identify, prioritize and semi-quantify barriers and enablers to AMD care. Participants individually ranked their perceived top five barriers and enablers with the most important granted a score of 5 and the least important a score of 1. For each barrier or enabler, the number of votes it received and its total score were recorded. Barriers and enablers selected by at least one participant in their top 5 were then qualitatively analysed, grouped using thematic analysis and total score calculated for each consolidated barrier or enabler. In-depth individual interviews were conducted with 10 ophthalmologists and 2 optometrists. Contributions were audio-recorded, transcribed verbatim and analysed with NVivo software. One hundred and sixty-nine barriers and 51 enablers to AMD care were identified in the focus groups. Of these, 102 barriers and 42 enablers were selected as one of their top 5 by at least one participant and further consolidated into 16 barriers and 10 enablers after thematic analysis. Factors impacting AMD care identified through analysis of the transcripts were coded to three categories of influence: patient-centered, practitioner-centered, and structural factors. Eyecare professionals considered poor care pathways, people with AMD’s poor disease understanding / denial, and cost of care / lack of funding, as the most significant barriers to AMD care; they considered shared care model, access, and communication as the most significant enablers to good AMD care. These findings suggest that Australian eyecare professionals perceive that there is a need for improved patient support systems and appropriately funded, clear

许可

CC BY 4.0

引用

学术使用请引用 DOI 10.1371/journal.pone.0228858(source: https://plos.figshare.com/articles/dataset/A_qualitative_exploration_of_Australian_eyecare_professional_perspectives_on_Age-Related_Macular_Degeneration_AMD_care/11838159)。

数据缺失?

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